Carson was rushed to the NICU just minutes after being born. The doctors noticed he wasn't breathing well and before they could even have him in their arms, he was taken away. Six long hours later, the doctor came to visit us and informed us something was wrong with his lungs. They were going to treat him for pneumonia, but they also could faintly see that something was wrong with his heart. Instead of taking any chances and lacking the machines they made need, they sent Carson and Omar rushing to Egleston Childrens' Hospital. It took another 5 hours of x-rays and evaluation for the doctors to inform them he had Total Anomalous Pulmonary Venous Connection (TAPVC). TAPVC is an extremely rare congenital heart disease with no chance of survival if left untreated. There are 4 types of this disease; Carson had the worst and most rare type of the disease. Basically, one of his arteries in his heart was pumping blood straight into his lungs. He was unable to breathe because it was as if he was drowning in his blood. Of course Omar did what any loving father would do and quickly signed the consent forms. At 7:45 AM, less than 24 hours after birth, Carson was undergoing open heart surgery. At about 2:00 PM, they finished the surgery. Omar was able to see him by 3:00 PM. Before he went to the CICU to see him, he was able to talk to the doctor. He explained to Omar that the surgery went well but that they discovered another major problem after opening his chest. They decided to keep his chest left open as they need to continue to monitor his heart. The doctor told him Carson's lungs looked very old; almost like a long-term cigarette smoker's lungs. The doctors say this is one of the rarest cases they have ever seen. He is on many medicines, 3 of which are helping him keep his blood pressure up. His extremely low blood pressure has been one of the biggest concerns since he was born. His blood-pressure medicine has caused his kidneys to begin failing. Hopefully his blood pressure will raise soon, allowing them to sew his chest back up.
There's not a second that goes by without Kelley and Omar thinking about their beautiful son, Carson. Omar has been out of work to help Kelley, and to be by Carson's side every minute that he can. Kelley is not going back to work at the moment, and does not have paid leave. They have a house to maintain and many bills piling up. Lastly, their insurance isn't covering all costs of Carson's surgeries and long hospital stay. If this touches your heart at all, please help them out. Even $5 would be a huge help to them! Thank you so much and please continue to pray for baby Carson and his family!
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