Help for Lexi- Marc Hester's daughter

Hi, my name is Phoenix. This is Lexi, she is beautiful isn't she? Lexi is 7 years old and she is the most lovable, kind hearted, well behaved, and sweetest girl ever! She is the daughter of @Marc Hester, one of my closest friends. Marc is a single parent and both a full time dad and mom to Lexi and her older brother Jackson. His entire world revolves around his two children.  Recently Lexi began having some health issues. After multiple blood-tests, X-rays and a 2 and a half hour MRI of her brain  where she was placed under general anesthesia and intubated with a machine breathing for her (like you would have for surgery) and tons of contrast pumped into her it was found that she has abnormalities with her pituitary gland and it is extremely enlarged. This, along with a very high elevation of the growth hormone has caused a condition called Central Precious Puberty to develop (I know I hadn't heard of it either, it is not a common thing). Because she has no markers for this that would typically be associated with CPP extensive testing had to be done. It turns out that this is just a symptom (which can be treated with a hormone suppressant therapy) of a more serious medical issue. Unfortunately the enlargement of the gland along with the elevated growth hormone is more often than not the result of a mass in the brain causing the gland to enlarge or causing the hormone elevation itself.   Moving forward, the elevated levels and enlarged pituitary require Lexi to have to get the same hours long, high contrast, under anesthesia and intubated MRI every 6-8 weeks along with blood work to see if hormone levels are going down and pituitary is shrinking after the start of treatment. The goal is to not just use the hormone suppressant to stop and reverse the Precocious Puberty which causes her to begin to develop way to early (remember she is just 7) which causes considerable emotional trauma but also causes her bones to rapidly age which is causing tremendous growth in height temporarily but will eventually stop and prevent her from reaching her normal projected height as an adult. The other hope of the therapy is that is shrinks the pituitary so they can do an MRI Slicing of it to better see if there is indeed a mass or tumor in there. The doctors are forthcoming saying this a very distinct probability and that they find it is more often malignant but we are still holding out hope this will not be the case. 

If after a couple of these MRI scans and blood hormone draws the pituitary is shrinking and they do not see tumors AND hormone levels are going down, the doctors can scale back how often and how in-depth the scan will be and move to an every 8-9 month 30 minute scan without being put under. If after the first scan, there is no change then the approach  has to get more aggressive with added medications and treatments with considerable side effects and more vigilantly monitor for a mass (brain tumor) with immediate neurological surgical intervention at first sign. But for now it is a wait and see scenario. All of this has developed and been diagnosed in the last 4 weeks with thousands upon thousands of dollars he has spent on testing since everything from the MRI (which has a team of 6 including the Anesthesiologist) to the blood tests are all highly specialized and can only be performed at certain facilities. Luckily he caught this early and got her into a Pediatric Endocrinologist. With the thousands spent at this point and the tens of thousands of dollars to come he learned that the medication for suppressant therapy the doctor believes will have the best outcome with less side effects based on her size since she is so tiny weighing only 51 pounds and the fact that she will need to be on it for 4 years costs over $37k per treatment and that is  just the medication, it does not include the cost of the surgeon, the facility, the other supplies or the anesthesia!  After fighting with the insurance provider over and over to approve the medications and treatments that the doctor and her peers said have the best chance of working for her he won (anyone that knows him knows he will fight and not give up when it comes to his children). Unfortunately because of the tier status of the medication and level of specialization required for everything the portion insurance is paying is lower even after he has met his max out of pocket family deductible for the year, I guess it is in the fine print. He has an open market plan because his employer's insurance was very expensive and provided even less coverage. The specialty pharmacy that fills this will actually send it by courier to the surgeon but not before the medication is paid for and the same for the surgeon and facility fees for beginning the treatment, payment first. Marc has done so much for so many and has never asked for anything including recognition for doing things for others. He would give you the shirt off of his back or even his last dollar. He has said no matter what he will find a way to make sure his daughter gets the treatment she needs and most probably would. He has reluctantly agreed to letting me put together this page to try and ease the stress and burden even though he would never ask others for help with anything. He has been solely supporting Lexi (7) and Jackson (9) for over 6 years now without ever asking anyone for help when their mother took off and will not help in the costs. These kids are so happy and loving and welcoming to everyone they meet, in fact Marc has kept it hidden from both of them that there is something seriously wrong with Lexi and downplayed the seriousness of it to almost everyone else while he internalized and took on the stress of all of this alone. He recently had to leave his job so that he could focus on getting Lexi better before she got worse because it was made clear to him by his employer that he would not be able to do both without it having an impact on his productivity. He has savings and is spending those because of his devotion to his children and is choosing to do without things to stretch it out. But the savings are not enough to cover all of this. Although he would never ask for it or admit it he needs help.  All banking information will be his and private and control of this page is being turned over to him but I will continue to support and help him. I hope you will join me in helping him fight for Lexi to get her better. While we hope that there is not a brain tumor or mass found and that it gets ruled idiopathic the chances are not high, but again we remain hopeful and pray.  No child should ever have to be faced with such an illness. I want to do everything possible to assist in helping making it possible for Lexi to receive the ongoing medical help and treatment she SO desperately needs. Thank you taking the time to read this and learn about Lexi. I know if you have met her she has made an impression on you and if you haven't  you would love her as much as we all do. Please even if you cannot contribute please share this.