To all my friends, family, colleagues, co-workers and clients. It is with great humility , but intense conviction that I write this letter. As many of you may or may not know I have Multiple Sclerosis (MS).I was first diagnosed in July of 2001 here in Erie.I was first told it the Relapsing Remitting type and started injection treatments.I went to Cleveland Clinic for a second opinion and was told it was the Primary Progressive type. From there came back to Erie and sought out another opinion. Made it down to Allegheny General Hospital in Pittsburgh where I was given yet another diagnose and treatment.Through out the last 13 years I have been to 5 Neurologists. I have been on almost every MS drug available, I am currently under the care of the Cleveland Clinic and on a new FDA approved medication.The progression of this disease is still occurring.Long story short, I AM NOT GOING TO JUST SIT BY AND NOT DO ANYTHING.
I have found a treatment option and a place where there is evidence of the possibility of curing or at least repairing the damaged myelin in my nerve cells. The treatment is STEM CELL INJECTIONS. Through my research I found they are doing this in all areas around the globe with excellent results. The US is only doing trials and we are at the mercy of the FDA, and government regulations. Well, I CAN'T and will not wait for that.
I have found a Clinic in Panama City, Panama called The StemCell Institute. www.cellmedicine.com . I have been accepted through application to receive this treatment. The cost is very expensive and of course not covered by insurance. I have set the bar high, as my motto is, THINK BIG AND DARE TO FAIL. My goal is to make 4 trips for the treatment, as from my research, this is a good target to aim for. Each trip will cost @$25,000.This includes the medical treatment and travel. My long term goal is to seek out this treatment and bring it back to the community and possibly help other people with this disease and other autoimmune diseases. I cannot and will not sit around and wait for new FDA approvals for treatment. Nothing ventured nothing gained. The risks are minimal if any. And I am willing to take that challenge.
I WANT TO DANCE WITH MY WIFE AGAIN
I WANT TO WALK MY DAUGHTER DOWN THE ISLE
I WANT TO SKI WITH MY SON.WELL, MAYBE GOLF
I AM REACHING OUT TO EVERYONE I MAY KNOW AND THAT YOU MAY KNOW. I ASK YOU TO PLEASE SHARE THIS WITH YOUR FRIENDS AND JOIN ME ON MY "JOURNEY FOR A CURE"
THANK YOU IN ADVANCE,
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