Since then, we have been seeing many specialists down in Marshfield (a 2 hour drive). His Nuerologist, Physical Medicine, Genetics, Orthopedic Surgeons, etc. He recently started having Infantile Spasms (seizures), and started a medication to help prevent the seizures. he also recently got fitted for new AFO's. He sees his Physical and Speech Therapists weekly.
With all of this, comes the need for expensive equipment. We really want to get him the Upsee by Firefly, so he can take his very first steps! He also needs a GoTo seat by Firefly, so we can easily take him places with us- as just going grocery shopping with him in the cart is a huge struggle. All of the specialists and tests he has gone through add up, and are not all covered by insurance.
Lucas's PT brought a special therapy to our attention, and we would absolutely LOVE to take him to do it. We would go on a week long trip to Canada to work with this therapist, Who would make a huge impact on Lucas's abilities, while training us how to do this therapy work on him ourselves. This is not something we can afford to do on our own. We truly appreciate any and all help we can get to better this amazing little man's life.
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