Please Help Remi

Hello everyone my name is Lakotah- Remi’s mom.

I write this with a heavy heart and a dread I cannot put into words. Honestly, I don’t even know where to begin or how to say it. Something a parent hopes they never have to experience, but here I am. This is incredibly uncomfortable to put myself out there, share our struggles and ask for help.

Remi is 8 years old with a beautiful soul. She’s a lover of animals and babies, quick witted, wise beyond her years, brave, fierce, smart and beautiful inside and out. A light in many peoples lives. She has a little sister, Haevyn(4) and we reside in Bozeman, Montana.

Some may know that we have been battling Remi’s medical for some time but we have kept it very private. We have chosen to keep things quiet and keep as much normalcy as we can to help Remi get through this. For Remi’s sake of privacy I will not go into deep detail of everything. She has really struggled with her decline of health and the unknown of what’s to come as well as the permanent changes that come with that. Something that an 8 year old shouldn’t have to deal with. A kid is suppose to just be a kid and I’m heart broken my daughter doesn’t get to do that with simplicity.

Around 18 months ago Remi started loosing her hearing at a rapid decline, as well as other concerning symptoms. We have been to many hospitals, appointments, specialists and different clinics looking for answers. Currently we are under the care of Salt Lake Childrens Hospital. For a few months things seemed to slow down and we thought we had time to figure out what was happening and get answers. Unfortunately she has had another flare up and things are progressing quickly. Time isn’t an option for us if we want to save Remi’s hearing and maybe even eye sight. We have been doing process of elimination and trying to move quickly to find a diagnosis. With no answers we are striving to move forward and looking at different hospitals and options for Remi. Remi’s main symptoms are progressive permeant hearing loss, vision loss, physically sick, chronic headaches, chronic inflammation throughout her whole body, and more that we do not wish to go into detail at this time. Remi’s quality of life, Mental health and hope have dwindled.

This March we had a week of appointments and received the upsetting news that things are moving fast. Leaving us all at a loss we will return in mid April for more appointments and a clinic with 12 specialists to determine our next move. We are also working with a blind and deaf advocate out of Great Falls, a few doctors in state, and a specialist in Texas. I have no idea what is to come or where and when we will be headed next.

As Remi’s mom its my job to do whatever I can in my power to get her the help she needs, and I will do that.

Reaching out and putting all our pain in front of everyone and being vulnerable is extremely difficult. The last thing I want to do is ask for help but I have came to a breaking point. As a single full time mom of two girls, working 2 jobs I am unable to cover all the costs. We still have no diagnosis and are seeking more answers so there is no end in sight as of now. I wish I had a diagnosis something to know, to see and heal but unfortunately we don’t.

Being the only provider and present parent in my kids life I am not able to get Remi all the care she needs. I will also not be able to work and make money while traveling for her medical appointments, bringing in no income. Donations will all go towards pay for travel, lodging and food for out of state hospital visits, incoming medical bills, bills back at home, living expenses (rent, bills, etc.) and what’s to come. Do not feel obligated to donate if you are not able. Sharing this and saying a prayer is enough but if you can help Remi we deeply appreciate it. The gratitude we hold is forever. Anything helps. Thank you for taking the time reading this and helping my little family.

If you do not wish to donate on this platform there is also a Venmo account @Lakotah-Erickson which will

be transferred to her medical account.

Please Pray for Remi and hold her in light and love.

Thank you,

Lakotah, Remi and Haevyn