Time is of the essence and we are quickly running out of it. Every day that goes by that he doesn't receive treatment is one day closer to the inevitable crippling of his hands, feet and spine.
While we are waiting for our insurance to take over we are having to pay out of pocket the cost of the Ilaris medication ($19,000+) monthly. Please help us to bring some much needed peace and pain relief, for which he is yearning for.
We are hopeful that the insurance will be approved in the next few months but in the mean-time Asher is getting worse. With every day that passes he is in desperate pain and his joints are bending and locking into place without the hope of the progression becoming reversible.
If we are lucky enough to reach our goal and have a surplus of money after the insurance starts paying the difference we will still continue to use the money raised to search for therapies over and beyond the medication. Such as ultra-light therapy, water therapies and if it gets worse, physical therapies.
Thank you so much for loving on Asher as your own. We are so grateful each and everyday for all the love and support you have shared. Please send much needed prayers and feel free to share this link as often as possible.
As most of you know the Bennett Family is strong, Asher being born at 28 weeks and spending over 40 days in the NICU, and Preston being born at 33 weeks...the Bennetts have persevered and will overcome this and will continue to fight.
From the bottom of our hearts, thank you for helping Asher.
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