We saw many specialists to help us get a better idea of what to expect, but she still did not seem like she was getting much better with the suggested treatments. With further testing we found out she had a tumour in her abdomen called Neuroblastoma. They resected the tumour and it was benign! But only a few short months later we were informed that the Neuroblastoma had come back. This time it resulted in 8 intense rounds of Chemotherapy and multiple surgeries, and all the complications that come along with it. It was a long 10 month stay at B.C. Children's Hospital without coming home and many more hospital stays for the years after.
But we are very happy to say that Kaitlyn is on the road to a happy, healthy life and is mostly able to stay home with the help of nursing staff and doctors.
To ensure that Kaitlyn lives a happy fulfilled life we needed to adapt her living environment to maximize Kaitlyn's potential and keep her home with us. We did renovate our house to make it accessible for her wheelchair and other equipment so we can still manage her daily care. We also were able to get her a hospital grade bed to keep her safe because she had outgrown her bed and has injured herself multiple times.
We also love to go on outings as a family, but we are finding it very difficult to transfer her and her wheelchair without having an accessible vehicle. We are in the process of purchasing a Van, but we will need to get the wheelchair conversion done ourselves. This is a very costly process and we are seeking some financial assistance to aid us in converting our vehicle to make it safe and accessible.
We want to be able to bring Kaitlyn together with our family and continue to see her big beautiful smile and her beaming with happiness when she is able to enjoy family life.
I want to thank-you for your time and consideration. This means a lot to our family.
the Sidhu family
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