Help me get my life back from MS

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Help me get my life back from MS

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This is so hard for me, you have no idea. I'm much better at giving than asking for anything so here goes....As many of you know and some of you may not know, I was diagnosed with multiple sclerosis (https://beta.mssociety.ca/about-ms/what-is-ms) in 2003 when I woke up partially blind and unable to walk. I had never been so afraid in my entire life. When the doctor told me what was wrong I literally cried for weeks and at the same time I had to put on a happy face as my father was passing away from Lou Gherigs disease and I didn't and wouldn't let him know I was sick too. All I could do was picture myself in a wheelchair and although l have been blessed that I am still able to walk, I have used a cane in the past, have been hospitalized many times, tried many different expensive MS drugs (none which have worked) and have many other symptoms. I was lucky enough in 2010 to have a procedure dubbed the "liberation treatment" done in New York where angioplasty was done to open my jugular and azaygos veins. The results were great while they lasted but unfortunately it is next to impossible to get follow-up treatment in Canada and my veins have since closed again. Most of my lesions are on my frontal lobe and my symptoms range from major depression, vision problems, muscle spasms, intense pain, especially in my legs and head and severe cognitive problems. It's been getting so bad I've been ready to give up and see a counsellor weekly to help keep me going. This is not easy at all for me to put out into the universe, I know you probably see my photos and see a normal happy girl but every day is a struggle, I'm just good at hiding it and putting on a happy face which I will continue to do as the last thing I want is for anyone to feel sorry for me or think of me as a "victim" because I am NOT a victim, I am a WARRIOR. I just think of how much I've accomplished feeling so unwell I can only imagine how much I could do if I felt good.

I have been researching stem cell transplants for MS and the results are very promising, especially for relapsing remitting like I have and I would like to have the procedure done here (https://stemgenex.com/stemgenex-superiority/) in hopes of getting myself back before I'm too far gone. I miss the old me and when I think about her I cry. Everything is so hard now. I stopped doing things I love because as much as I want to, I physically and mentally just can't. If you can find it in your heart to help, even just a little I would be forever thankful and promise to continue always paying it forward. If you have any questions, please do not hesitate. Bless you all.

Mist

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Misty Helena
Organizer
Spruce Grove, AB
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