F-U, FA!

Please join me in raising money for Freidreichs Ataxia!! You probably have not heard of FA before, and this is because it is extremely rare. According to the Friedreich’s Ataxia Research Alliance, approximately there are 4,000 people in the US and only 15,000 globally who are diagnosed. FA is a degenerative neuro-muscular disorder that is inherited as a recessive gene, which speaks for the scarcity. At the moment, there is no cure for FA…

 

Last year I got my first job out of college working for Clinilabs, a Drug Development Corporation, where I was first introduced to FA. I was a research assistant, and I started out on the floor working with the subjects, most with obvious symptoms of FA, such as being wheelchair bound, speech impairments, loss of sensation in limbs, and so on. To be honest, I was so nervous!! This was completely new to me and I had never even heard of FA before. I entered this new-ness with an open heart and I was floored by the optimism, gratitude and joy all of my subjects displayed every single day. I know I speak on behalf of all of my coworkers, the spirit of all our subjects was utterly bright. I was so privileged to work so closely with all of the “subjects” who have all become my very dear friends.

 

As you can imagine, this study was elaborate, crucially precise and highly costly. By donating to small causes (such as this one) makes the biggest difference in finding a cure! I made a promise to my very best friend that I would run a race to spread awareness and raise money to find a cure for FA, so this year I am running a half marathon on October 31st in honor of all my people! I love you guys so much, you have given me the greatest gift! Thank you for reading :) For more info: https://www.curefa.org/index.php

 

F-U, FA!