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My names is Kayla but we aren't here for me I want to tell you about My best friends Mallory and Jake Carter and their amazing little boy Elias!
Elias has an extensive medical history and he’s only five. He was born with a sub temporal encephalocele. Which is basically a hole in his skull that his brain grew out of and down the side of his face. It stunted the growth of the jaw, teeth, and ear canal on the left side of his face. He had his first brain surgery Oct 2017 when they did a Chiari decompression. This was successful but showed doctors he didn’t have the usual bone structure, let alone bone itself, they referred to it as spongey bone. He was in icu for five days then went to Frazier for a week. In June 2018 he had the brain surgery to remove the excess brain growth, it was stroked out and caused him pain to the touch, after this surgery swelling in his brain caused two vessels to collapse resulting in a stroke that paralyzed the right side of his body. We went to Frazier for two weeks and he went home in a wheelchair. To this day we do three therapy sessions a week. Physical, occupational, and speech. It took him about six weeks after the stroke to be able to crawl around and eventually stand on his own. He wears a brace on his leg that helps him to walk, but he still carries his arm high although he is getting more use out of it. But wait, there’s more. Last year when we went to do a jaw reconstruction, they found a spinal fluid leak as well as an abscess. This is the third surgery. The abscess had to be cut out but the structure they placed in his head during the second surgery was covered with a bacteria called pseudomonas. He ended up going in for a fourth surgery to remove the infected plates in his head. We were in the hospital for an entire month with the infection, they flushed iodine through his scalp and it was the worst anyone had seen him go through. And he didn’t even get the jaw reconstruction done. So here we are in 2020. In March he had a fifth surgery where they put in a shunt to drain the loads of spinal fluid pushing down on his brain, in April he had his ear canal closed (6th surgery) to block any chance of anything (bacteria for example) getting in or out. But since the fluid put all that pressure in his head before it caused another Chiari and syrinx. Therefore this past weekend he had his seventh surgery (another brain surgery) to decompress the Chiari once again. This time they had to carefully remove built up scar tissue and open the dura, etc. They estimate a three to five day hospital stay this time, but no word yet if he’ll go back to Frazier Rehab. He’s been in for three days already and has just taken his first sip of milk since before the surgery. He needs to eat and get moving before he can go home.
I just wanted to make sure they wouldn't have to worry while they are taking the time off and making sure Elias get all the care he needs.
If you can not donate and prayer and a share would be appreciated! Thank you!
Elias has an extensive medical history and he’s only five. He was born with a sub temporal encephalocele. Which is basically a hole in his skull that his brain grew out of and down the side of his face. It stunted the growth of the jaw, teeth, and ear canal on the left side of his face. He had his first brain surgery Oct 2017 when they did a Chiari decompression. This was successful but showed doctors he didn’t have the usual bone structure, let alone bone itself, they referred to it as spongey bone. He was in icu for five days then went to Frazier for a week. In June 2018 he had the brain surgery to remove the excess brain growth, it was stroked out and caused him pain to the touch, after this surgery swelling in his brain caused two vessels to collapse resulting in a stroke that paralyzed the right side of his body. We went to Frazier for two weeks and he went home in a wheelchair. To this day we do three therapy sessions a week. Physical, occupational, and speech. It took him about six weeks after the stroke to be able to crawl around and eventually stand on his own. He wears a brace on his leg that helps him to walk, but he still carries his arm high although he is getting more use out of it. But wait, there’s more. Last year when we went to do a jaw reconstruction, they found a spinal fluid leak as well as an abscess. This is the third surgery. The abscess had to be cut out but the structure they placed in his head during the second surgery was covered with a bacteria called pseudomonas. He ended up going in for a fourth surgery to remove the infected plates in his head. We were in the hospital for an entire month with the infection, they flushed iodine through his scalp and it was the worst anyone had seen him go through. And he didn’t even get the jaw reconstruction done. So here we are in 2020. In March he had a fifth surgery where they put in a shunt to drain the loads of spinal fluid pushing down on his brain, in April he had his ear canal closed (6th surgery) to block any chance of anything (bacteria for example) getting in or out. But since the fluid put all that pressure in his head before it caused another Chiari and syrinx. Therefore this past weekend he had his seventh surgery (another brain surgery) to decompress the Chiari once again. This time they had to carefully remove built up scar tissue and open the dura, etc. They estimate a three to five day hospital stay this time, but no word yet if he’ll go back to Frazier Rehab. He’s been in for three days already and has just taken his first sip of milk since before the surgery. He needs to eat and get moving before he can go home.
I just wanted to make sure they wouldn't have to worry while they are taking the time off and making sure Elias get all the care he needs.
If you can not donate and prayer and a share would be appreciated! Thank you!
Organizer and beneficiary
Mallory Carter
Beneficiary