In March of 2008, his mom had an ultrasound and we learned that Kevin would be born with a heart defect. One week later he was born at the University of Utah and immediatley handed through the window to the Pediatric Intensive Care Unit (PICU) of Primary Children's Hospital.
He was born with Tricuspid Artresia which means that his tricuspid valve in his heart did not develop causing one of the chambers of his heart to not develop properly either. He underwent open heart surgery when he was two days old. They also learned that he had Transposition which means the veins and arteries were on the opposite sides of normal. When he was four months old he had his second open heart surgery. This is an amazing little boy.
(before his first surgery)
(After his first surgery)
(One week old)
Becaue of his birth defects he qualified for disability. Through some miscommunications and misunderstandings, Kevin lost his disability. His parents are in the process of jumping all of the many many hoops required to requalify for that. In the meantime, they have done what they can to provide the medical care he needs. Both of his parents work and make their children a priority in their lives.
In November of last year, we learned that due to medical advances, Kevin may not have to have the anticipated third heart surgery right away. WHAT A RELIEF!! But to make certain that this was what was best for him, he had a heart cath test done in January to assure this was the right choice.
(Our brave Kevin going in for his heart cath with his new koala friend dressed like spiderman.)
Although his dad carries health insurance for his family, I recently learned that the amount they will owe for these two check ups to include testing is at LEAST $9000 and this is AFTER insurance.
This is a young family doing all they can to take care of their OWN responsibilities. What an overwhelming blow this was for them to be handed. Despite this they continue to keep a positive attitude and try not to let this get them down.
This is heart breaking for a mother/grandmother to watch. I do NOT want to enable them but feel this is a great opportunity for people to serve others. What a great opportunity to pay it forward.
Please consider helping this family out by making a donation, sharing their page, or helping in whatever way your heart guides you to.
Thank you for reading Kevin's story. If you are unable to contribute at least you got to share in that incredible smile that he shares with EVERYONE he meets. ALL funds we receive for this campaign will go directly to his medical expenses.
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