- J

My 6 year old son Jay was born with congenital cytomegalovirus (CMV). As a result, he is deaf in one ear, nearsighted, dependent on a feeding tube, and has spastic quad cerebral palsy. The cerebral palsy affects his motor skills and has made it hard for him to learn how to eat, roll, sit, rotate his arms to grab things, and walk on his own.
The Napa Intensive Therapy Program is a world renowned therapy center that works with kids with disabilities to develop individualized programs targeting their specific needs. Napa’s history in helping kids like Jay has shown that typically kids can make a years worth of progress in their 3 week stay. They have special technology and techniques that their therapists are highly trained in to help kids learn how to move safely and develop neural pathways for movement. Their NeuroSuit technology is used several hours per day to facilitate proper movement and reflexes and help to suppress some of their involuntary movements.
He has been lucky enough to attend the program in the past and has made tremendous strides with the help of NAPA. We are hoping to be able to attend another NAPA intensive this July, to further Jays progress on sitting, stepping, and feeding.
Given the equipment, the training of the program’s therapists, and housing/travel expenses for the three weeks in Charlotte NC, the program will cost over $15,000.
I have recently had to take out loans for a wheelchair van and a bathroom modification (bathing him was becoming unsafe with his weight and strength), and the only spot we could get at NAPA happens to be during busy season at my job, so I could use any help I can get to make this possible for him.
Its hard for me to publicly ask for financial help and I’ve spent a good amount of time debating even making this GoFundMe page, but anything anyone can contribute would help and be greatly appreciated. Jay deserves the world and this is a big opportunity for him - please help us get him there. Thank you.

