In October of 2015, my youngest daughter, Molly, became ill. It took months of testing, countless doctors, an we were still left with no answer. With some of the results we received from these numerous tests we started to piece this ugly puzzle together. She had all of the symptoms of Lyme Disease, some markers from testing pointing that direction, but no doctor willing to test her. She went as far as seeing 5 different doctors around the Omaha area requesting a Lyme test. After being billed out thousands upon thousands of dollars in medical bills, all she asked for was a $375 dollar test she was willing to pay for out of pocket. One doctor even reported to her (it is listed in her medical records) "I told her that Lyme Disease does not exist in Nebraska, it is unneccesary to test for it."
Finally, we tracked down a Lyme-literate doctor in the small town of Fairmont, MN. We scheduled the appointment, packed our bags, and headed that way. At this point Molly had already lost 20lbs, she could no longer drive a car, she was losing her hair, she suffered from visual disturbances, extreme fatigue, numbness and tingling in her hands and feet, nausea and tingling in her hands and feet, nausea and vomiting, and the lsit continued to grow. However, at last we had an answer. She was diagnosed with Chronic Lyme Disease. It took 3 weeks to find a doctor in Omaha that was willing to sign off on the orders from MN to provide her treament. As the State requires you to have a home physician watching over your case.
On May 8th, 2016, she had a picc line placed and started a strong course of IV antibiotics. However, she quickly ran into problems. Within the first week she started having extreme pain in her arm as well as swelling. The picc line had created blood clots in her arm. Which meant daily Lovenox shots in her stomach. The antibiotics started to give some relief to her symptoms. However, she started having new symptoms. Her hands would swell, burn, and rash. She couldn't sleep without her hands covered in ice packs. The doctors went back and forth on if this was a herximer reaction from the Lyme die off or if it was an allergic reaction to the meds. After multiple attempts with different antibiotics she was given the option to be pulled off of them or deal with these symptoms. She continued. In Late September, her arm started swelling yet again. This required another visit to the ER. We were then told that she had another blood clot even though she was currently on blood thinners. At this point the doctor insisted it was time to pull out of this treatment. She was only 3 weeks shy of completion. Once the picc line was removed she continued to have swelling in her arm. This led to a visit to the Vascular doctor. That resulted in an angioplasty. Because she was told being put under for a procedure can create havoc to the Lyme she did this procedure completely awake... no pain meds... just localized numbing to the arm. During this entire time we were making monthly visits to MN to see her doctor. We continued to do this through March of this year. However, she seemed to be coming to a plateau. She wasn't getting better.... and some days she started to get worse. In April, she made two seperate trips to the ER. One because she was experience shortness of breath. She could barely walk across the house without feeling like she would pass out. They found a small amout of fluid in her chest which was treated with a lasix. All of this led us to looking for new treatment. She was too scared to go back on a second set of antibiotics as she had so many issues before and she was leary of what it would do to her immune system after the last 5-month-course.
This is when we found our way to the Hansa Center in Wichita, Kansas. This is a homeopathic facility that is known around the globe for its treatment of Lyme Disease. With their head doctor being the founder of Bio-Resonance Scanning. Molly just completed her first two weeks of treatment there under the care of Dr. Jonathan Streit. If you have seen her FB posts you will know that we have learned more information in two weeks than we have over the last 19 months. This is what brings me to setting up a go fund me page. Because the CDC denies Chronic Lyme this means insurance companies are not required to cover costs related to the disease. On average, Lyme patients pay $55,000 per year out-of-pocket. This does not include monthly insurance premiums. 61% of patients suffer for more than 2 years before a Lyme Diagnosis. The first treatment was donated mostly by a dear friend of her husband.
However, the need for treatment is on going. She has thousands and thousands of unpaid medical bills and still requires continued treatment. She has been progessing better on this course of treatment than everything we have tried before. So we want to keep this trend moving. She still has some very bad days. However, that is common with Lyme. Her next scheduled visit is for the first week in August. Which she will stay for a week. She will continue to make these trips every 8-16 weeks depending on her physical state.
Anyone that knows her knows that she would give the shirt off of her back to help someone else. She continues to push herself far beyond her current physical state, and continues to help others even when she feels so awful. Last year alone, she helped one family that was going through the devastating effects of cancer with a loved one. She sent food whenever she could. She even had me stop at the store on our way out of town to see her doctor to get food for this family to drop it off before we left. By the time we got to the hotel she was exhausted. When that loved one passed she spent hours making a memorial video for his service. This is just one example of the kind of person she is.
I ask as a mother. If you can help ease the burden of the cost of her past medical bills that are piled up and for her current and upcoming treament it would be greatly appreciated. If you are unable to help monetarily please pray for her. That she continues to get the treatment that she needs and God continues to lead her on the path of health and wellness. God Bless.
Finally, we tracked down a Lyme-literate doctor in the small town of Fairmont, MN. We scheduled the appointment, packed our bags, and headed that way. At this point Molly had already lost 20lbs, she could no longer drive a car, she was losing her hair, she suffered from visual disturbances, extreme fatigue, numbness and tingling in her hands and feet, nausea and tingling in her hands and feet, nausea and vomiting, and the lsit continued to grow. However, at last we had an answer. She was diagnosed with Chronic Lyme Disease. It took 3 weeks to find a doctor in Omaha that was willing to sign off on the orders from MN to provide her treament. As the State requires you to have a home physician watching over your case.
On May 8th, 2016, she had a picc line placed and started a strong course of IV antibiotics. However, she quickly ran into problems. Within the first week she started having extreme pain in her arm as well as swelling. The picc line had created blood clots in her arm. Which meant daily Lovenox shots in her stomach. The antibiotics started to give some relief to her symptoms. However, she started having new symptoms. Her hands would swell, burn, and rash. She couldn't sleep without her hands covered in ice packs. The doctors went back and forth on if this was a herximer reaction from the Lyme die off or if it was an allergic reaction to the meds. After multiple attempts with different antibiotics she was given the option to be pulled off of them or deal with these symptoms. She continued. In Late September, her arm started swelling yet again. This required another visit to the ER. We were then told that she had another blood clot even though she was currently on blood thinners. At this point the doctor insisted it was time to pull out of this treatment. She was only 3 weeks shy of completion. Once the picc line was removed she continued to have swelling in her arm. This led to a visit to the Vascular doctor. That resulted in an angioplasty. Because she was told being put under for a procedure can create havoc to the Lyme she did this procedure completely awake... no pain meds... just localized numbing to the arm. During this entire time we were making monthly visits to MN to see her doctor. We continued to do this through March of this year. However, she seemed to be coming to a plateau. She wasn't getting better.... and some days she started to get worse. In April, she made two seperate trips to the ER. One because she was experience shortness of breath. She could barely walk across the house without feeling like she would pass out. They found a small amout of fluid in her chest which was treated with a lasix. All of this led us to looking for new treatment. She was too scared to go back on a second set of antibiotics as she had so many issues before and she was leary of what it would do to her immune system after the last 5-month-course.
This is when we found our way to the Hansa Center in Wichita, Kansas. This is a homeopathic facility that is known around the globe for its treatment of Lyme Disease. With their head doctor being the founder of Bio-Resonance Scanning. Molly just completed her first two weeks of treatment there under the care of Dr. Jonathan Streit. If you have seen her FB posts you will know that we have learned more information in two weeks than we have over the last 19 months. This is what brings me to setting up a go fund me page. Because the CDC denies Chronic Lyme this means insurance companies are not required to cover costs related to the disease. On average, Lyme patients pay $55,000 per year out-of-pocket. This does not include monthly insurance premiums. 61% of patients suffer for more than 2 years before a Lyme Diagnosis. The first treatment was donated mostly by a dear friend of her husband.
However, the need for treatment is on going. She has thousands and thousands of unpaid medical bills and still requires continued treatment. She has been progessing better on this course of treatment than everything we have tried before. So we want to keep this trend moving. She still has some very bad days. However, that is common with Lyme. Her next scheduled visit is for the first week in August. Which she will stay for a week. She will continue to make these trips every 8-16 weeks depending on her physical state.
Anyone that knows her knows that she would give the shirt off of her back to help someone else. She continues to push herself far beyond her current physical state, and continues to help others even when she feels so awful. Last year alone, she helped one family that was going through the devastating effects of cancer with a loved one. She sent food whenever she could. She even had me stop at the store on our way out of town to see her doctor to get food for this family to drop it off before we left. By the time we got to the hotel she was exhausted. When that loved one passed she spent hours making a memorial video for his service. This is just one example of the kind of person she is.
I ask as a mother. If you can help ease the burden of the cost of her past medical bills that are piled up and for her current and upcoming treament it would be greatly appreciated. If you are unable to help monetarily please pray for her. That she continues to get the treatment that she needs and God continues to lead her on the path of health and wellness. God Bless.
Organizer and beneficiary
Molly Heng
Beneficiary