Randy's Medical Expenses

Randy has been dealing with a corneal ulcer since March 5, 2017. Most corneal ulcers are from not wearing the contacts correctly (e.g. sleeping in them or wearing them for days at a time), and Randy hasn't worn his contacts since December. In March, Randy was seen in the ER, and the next day seen by his eye doctor, who we saw several times a week during the month of March. At the end of March the eye doctor said he wanted a second opinion so we went to a doctor in The Villages (two hours away) and made several trips throughout April and May. He was treated at this office with Prokera Ring 2 different times, the first time he had improvement, the 2nd time there was no improvement, and then he took a turn for the worse. This time we were sent to UF in Gainesville, FL (1 hour and 45 minutes away). He was seen there for 3 weeks and although the eye showed little to no improvement, he took another turn for the worse. The ulcer was very thin and it perforated (which means it burst open and he was bleeding in the eye), meaning he needed a corneal transplant. After the transplant, the doctor sent his cornea to the lab and the cultures came back showing acanthamoeba keratitis, which is an amoeba. Knowing that the problems were caused by an amoeba, we now know that the transplant will likely fail and be rejected by the body. This is because he can't have the usual anti-rejection drugs that would be prescribed to a corneal transplant patient, because steroids make amoebas grow and the doctor was only able to get 95% of infection that was in Randy's eye.   Four of the medications he is on are compound prescriptions, meaning they are not made commercially, but prepared in a sterile lab environment in the pharmacy, tailored to more specific parameters according to the doctor's orders. They are made without preservatives so they expire a week after being mixed, meaning they must be filled weekly. Because of this, there are very few pharmacies with an environment suitable for mixing these medications, making them very expensive. Most insurance companies, including ours, do not cover compound prescriptions, so our weekly medical bills have largely increased. We are currently paying approximately $500 each week for his prescriptions, on top of the bills for his transplant, because our insurance does not provide adequate coverage for corneal transplants. The transplant alone will cost us between $15,000 to $20,000 each and we know now that he will have to have at least 2 if not 3 corneal transplants.  For the foreseeable future we will contunie to make 3 trips a week to UF Gainesville, and 1 trip a week to Jacksonville (2.5 hours) to get the medication that Randy will need. With all of this being said, our family is down one income since Randy can't work. He hasn't been able to work since March and won't be able to return until 6 months after a successful transplant. 
If your hearts and prayers lead you, our family would be beyond blessed by any donations you feel lead to make, to help our husband and father get his vision back. 

Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows. James 1:17

Donations

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  • Find A Cure Panel 
    • $200 
    • 24 mos
  • galorgd@yahoo.com Argudo 
    • $30 
    • 33 mos
  • Stephanie P 
    • $20 
    • 37 mos
  • Linda Franklin 
    • $20 
    • 37 mos
  • Anonymous 
    • $100 
    • 39 mos
See all

Organizer

Kim Varner-Frey 
Organizer
Winter Garden, FL
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