Help SMA Mustafa Baran Karakiraz

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€937 raised of €100K

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Help SMA Mustafa Baran Karakiraz

Help SMA Mustafa Baran Karakiraz

0% complete

€937 raised of €100K

22 donations
Donation protected
Ben Mustafa Baran, 18 Temmuz 2024 tarihinde Çorum’da dünyaya geldim. Maalesef, henüz 5 günlükken yapılan topuk kanı testinde Spinal Müsküler Atrofi (SMA) Tip 2 teşhisi konuldu. Hayata tutunmak için ihtiyacım olan Sprinza ilacının ilk dozunu 25 günlükken Ankara’da aldım ve bugüne kadar 5 doz aldım. Ancak, ne yazık ki sadece bir kez alabileceğim ve yaşam kalitemi önemli ölçüde artıracak olan diğer ilacı karşılayacak gücümüz yok. Bu nedenle ailem, hayata tutunabilmem için Çorum Valiliği’nin izniyle 9 Nisan 2025 tarihinde bir bağış kampanyası başlattı. Şu anda 9 aylık bir bebeğim ve yaşama sımsıkı tutunmak istiyorum. Siz de kampanyama destek olarak sesimi duyurmamıza ve hayata tutunmama vesile olabilir misiniz? Minik kalbim sizin desteklerinizle umutla dolacak.

I am Mustafa Baran, born in Corum on July 18, 2024. Unfortunately, I was diagnosed with Spinal Muscular Atrophy (SMA) Type 2 in a heel prick test when I was only 5 days old. I received the first dose of Sprinza, which I needed to hold on to life, when I was 25 days old in Ankara and have received 5 doses to date. However, unfortunately, we cannot afford the other medication that I can only take once and that will significantly improve my quality of life. For this reason, my family launched a donation campaign on April 9, 2025 with the permission of the Corum Governorship so that I can hold on to life. I am currently a 9-month-old baby and I want to hold on to life tightly. Can you support my campaign and help me make my voice heard and hold on to life? My little heart will be filled with hope with your support.

Ich bin Mustafa Baran und wurde am 18. Juli 2024 in Çorum geboren. Leider wurde bei mir im Alter von fünf Tagen durch einen Fersenbluttest Spinale Muskelatrophie Typ 2 (SMA) diagnostiziert. Die erste Dosis Sprinza, die ich zum Überleben brauchte, erhielt ich mit 25 Tagen in Ankara und habe bis heute fünf Dosen erhalten. Leider können wir uns die anderen Medikamente, die ich nur einmal einnehmen kann und die meine Lebensqualität deutlich verbessern werden, nicht leisten. Aus diesem Grund hat meine Familie am 9. April 2025 mit Genehmigung der Gouverneurschaft von Çorum eine Spendenaktion gestartet, damit ich am Leben bleiben kann. Ich bin jetzt ein neun Monate altes Baby und möchte mein Leben festhalten. Können Sie meine Aktion unterstützen und mir helfen, meine Stimme zu erheben und am Leben zu bleiben? Mit Ihrer Unterstützung wird mein kleines Herz mit Hoffnung erfüllt.
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