Help Brandon fight Muscular Dystrophy
Donation protected
This is a plea for help for my amazing brother, Brandon Rhodes.
My brother is one of the most generous, hardworking and loving father, son, brother and friend you'll ever meet.
About two years ago, he noticed muscle weakness and loss of motor control in his shoulders and arms and hands when attempting to perform simple tasks like using his hands to pick up objects, brushing his teeth, writing and even using eating utensils. He began a long expensive journey of doctors’ visits and testing and he was initially diagnosed with Myasthenia Gravis and CIDP approximately a year ago to which Limb-Girdle Muscular Dystrophy (LGMD) has now been added. There is no present cure for Muscular Dystrophy. These are all autoimmune diseases causing muscle deterioration and loss of motor skills. He was prescribed IVIG treatments which initially appeared to promote energy and slow down the process for a while until he noticed soreness and weakness in his legs which exceeded the pain and weakness that he had been experiencing previously. Subsequently, his neurologist doubled the IVIG treatments to two days per week. A nurse comes to his home and administers the treatments which takes about five hours and renders him extremely fatigued for a minimum of a day after the treatments. He has incurred many medical bills and is facing many more tests which require co-pays up front. His medical bills alone are growing and he is facing the inability to live without assistance. His body is rapidly deteriorating and we are unsure what challenges each day will bring.
He has been self-employed and has government healthcare. His tests, medication and physicians are all subject to approval by his insurance company which he cannot afford to lose and we are struggling to keep paying with his inability to work. He is filing for disability but that will take some time and doesn't cover a fraction of the necessary expenses as well as basic needs to sustain life. We continue researching and reaching out to MD foundations for any assistance we can get. However, we need immediate assistance for medical bills and acclimating him to his new life. He will need accessibility accommodations that are not covered by insurance, assistance with medical bills and co-pays and living expenses. We are asking for any amount of donations you are able to bless us with. If you cannot provide a donation, we would greatly appreciate your prayers.
Although, there is no treatment for the LGMD we are praying for a future breakthrough to cure this horrible disease.
My brother is one of the most generous, hardworking and loving father, son, brother and friend you'll ever meet.
About two years ago, he noticed muscle weakness and loss of motor control in his shoulders and arms and hands when attempting to perform simple tasks like using his hands to pick up objects, brushing his teeth, writing and even using eating utensils. He began a long expensive journey of doctors’ visits and testing and he was initially diagnosed with Myasthenia Gravis and CIDP approximately a year ago to which Limb-Girdle Muscular Dystrophy (LGMD) has now been added. There is no present cure for Muscular Dystrophy. These are all autoimmune diseases causing muscle deterioration and loss of motor skills. He was prescribed IVIG treatments which initially appeared to promote energy and slow down the process for a while until he noticed soreness and weakness in his legs which exceeded the pain and weakness that he had been experiencing previously. Subsequently, his neurologist doubled the IVIG treatments to two days per week. A nurse comes to his home and administers the treatments which takes about five hours and renders him extremely fatigued for a minimum of a day after the treatments. He has incurred many medical bills and is facing many more tests which require co-pays up front. His medical bills alone are growing and he is facing the inability to live without assistance. His body is rapidly deteriorating and we are unsure what challenges each day will bring.
He has been self-employed and has government healthcare. His tests, medication and physicians are all subject to approval by his insurance company which he cannot afford to lose and we are struggling to keep paying with his inability to work. He is filing for disability but that will take some time and doesn't cover a fraction of the necessary expenses as well as basic needs to sustain life. We continue researching and reaching out to MD foundations for any assistance we can get. However, we need immediate assistance for medical bills and acclimating him to his new life. He will need accessibility accommodations that are not covered by insurance, assistance with medical bills and co-pays and living expenses. We are asking for any amount of donations you are able to bless us with. If you cannot provide a donation, we would greatly appreciate your prayers.
Although, there is no treatment for the LGMD we are praying for a future breakthrough to cure this horrible disease.
Organizer and beneficiary
Elizabeth Ison
Organizer
Acworth, GA
Delborah Rhodes
Beneficiary