My beautiful Niece Naomi was born with a rare genetic disorder called DiGeorge Syndrome. The day that she was born Naomi and her Dad (my brother) had to emergency flight to Denver Children's Hospital due to severe heart defects often associated with DiGeorge. She also has a severe cleft pallet. Naomi made it through her first open heart surgery quite well and got to come home with her parents and two big brothers. She has had a lot of stomach and bowel issues but eventually they found a formula she could tolerate and she started to grain weight. But on the 5th of March at 6 months of age, she had to have another open heart surgery that would hopefully keep her from another surgery for several years. Her surgery went really well and they accomplished what they hoped for. But during recovery she has had a very bumpy road. She first got pneumonia that was a result from a common cold that she must have been carrying before surgery. She recovered well from that but began having problems with her bowels. One thing after another. She has now tested positive for C-Diff which is causing inflamation in her bowels and toxic bowel. They had to do an exploritory procedure, and they found no necrotic (dead) bowel, so that was very good news. They took out her appendix and were able to evacuate a half a liter of undigested food and quite a bit of air. She has a temperature off and on in which they think is related to her bowel and it has been effecting her vitals off and on as well.
At this point as the medical expenses are rising, and with it,
the need for income to cover medical bills and travel, it is preventing my brother from being in Denver during a time in which his baby girls health is at a critical stage. I hope to eleviate the pressure of income to allow my brother to be there for his wife and daughter during this tramatic time in their lives.
And more than anything, I ask for your prayers! Naomi is our little warrior, and has put up such an incredible fight. Please pray for her incredible doctors and nurses. C-Diff is life threatening, especially to a baby so weak and fragile. Please pray for her healing and full recovery. Words can't express our gratitude..
To keep up with Naomi and her condition please visit Prayers for Naomi on CaringBridge.org
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