Tuesday Feb 2, 2016...
First off, on behalf of Lacey & I, we'd like to thank everyone for all your love, support, & prayers.❤We love you. They're going to now do another Bronchial Scope camera down his throat during surgery to look at his TE Fistulia repair & lungs again. We also found out there's still a little hole in his heart, that they're going to close, therefore having to stop his heart now, (super scary). And, now with his valve leaking, there's a 50/50 chance they may be able to just repair it? This may be good & bad... Good being, he won't have to take any blood transfusion meds, etc & it's his own valve, so his heart will grow normal w/it. Bad, is... they feel it'll only last 3-5years, which means we could be back sooner. With a pig or cadavera they last 5-15 years. But, they won't know until they're physically in there, & also they won't know until they physically in there too, if they'll have to use a cadaver or pig valve? His surgery is expected to be 4-6 hrs starting at 7a. It takes an hour & half just to get to his heart w/the laser incisions... Bc at his age, his breast plate tissues are connected to his heart, & his heart is enlarged Bc of his valve, & it will go back to a normal size kids heart a few months down the rd after... Good news is tho, they said yes the incisions this time are very time consuming & difficult, but the surgery isn't as difficult as before Bc of his age & size... AND, they pretty much guaranteed us, Bc of his age & size too, we shouldn't worry about any cardiac arrest. Assuming everything goes as planned... He should be out of ICU by Fri/Sat... Upstairs & home by Tuesday Wednesday. Our heart breaks on how much pain the surgical team said he'd be in after. They said his pain will be unbearable & he'll be on a lot of pain meds. Feeling a little helpless for our lil fighter. But, still
trying to stay strong.
We found out yesterday Jan. 20, 2016, his next open heart surgery to replace his pulmonary valve will be sooner than expected, & after his recent MRI his valve needs to be replaced ASAP. Therefore, it has been sheduled now for Thursday Feb. 4th, 2016 at Lucille Children's Hospital at Stanford. Our fighter needs your help. WE need your help. They expect his recovery to be in the children's ICU 2-5 days at Stanford. Then, home taking it easy the next 4-6 weeks. Jameson's 5th birthday is March 16th... I can't imagine him having to spend a (third) bday in the hospital. Thank you all for your donations & your continuos love, prayers, & support.
Jameson Neil Elin, born 4lbs 9oz 19in on March 16, 2011 in San Francisco, Ca. Jameson was a full term baby born with a rare heart defect called Tetrology of Fallot. He was also born with TE Fistula. At 1 day old he had emergency trachea esophagus surgery. At 5 days old he was taken to Lucile Childern's Hospital of Stanford to undergo open heart surgery. He went into cardiac arrest for 15 minutes the morning after his surgery. No parent should ever get that 6am phone call, to get here now! He was able to come home after 2 major surgeries, & cardiac arrest, 2 months later on Easter Sunday. He's beaten all odds. He's done tests at the Whitney Clinic in SF & is above all expectations. Doctors call him the "miracle baby!" Jameson is 4 years old now, he has 7 specialist Drs whom he sees on a regular basis. He's half way through his second year of preschool at Windsor Christian Acadamey. He's suffered through chronic pneumonia's his entire short life living in & out of Sutter SF. He missed half of preschool last year because of pneumonia. This year although he's had pneumonia a couple times, he really hasn't missed much school. And, Jamoe LOVES school! Jameson's very excited, next year is Kindergarten & he'll be in the same playground area as his older sister Taylor (10), she'll be in 6th grade!
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