Seeking Support for My Journey with Tourette Syndrome

Seeking Support for a Tourette’s Diagnosis and Treatment

Hi everyone,

I’m reaching out to share an update on my health journey and to ask for your support as I take a step toward improving my quality of life.

In August 2023, I began receiving support for ADHD, eating disorders, and related mental health challenges. Shortly after, I began experiencing sudden and persistent tics—something I hadn’t dealt with before. After seeking help, I was told that I likely have Tourette Syndrome, a neurological condition that affects both motor and vocal control. Unfortunately, due to the current state of NHS waiting lists, I’m not scheduled for a formal assessment until 2027.

Living with undiagnosed Tourette’s has been incredibly challenging. The tics are not only painful and exhausting, but they’ve also affected my ability to work and be fully present for my family. I’ve had to step away from my role supporting children with additional needs, which has been a heartbreaking decision. At home, the situation has impacted my daughter too—she’s had to step into a caregiving role far beyond her years, and I want to ease that responsibility for her.

That’s why I’ve decided to fundraise to access a private diagnosis and treatment plan. A confirmed diagnosis will open the door to tailored support and interventions, and most importantly, it could help me regain more independence and stability.

Any contribution—whether through donations, sharing this post, or pointing me in the direction of resources—would be deeply appreciated. Your support could make a real difference, helping me move forward with the right care, and giving my daughter the chance to simply enjoy being a teenager again.

Thank you for taking the time to read and share. With hope and love,

Emma