Thank you for visiting our site. This was created to raise funds for baby Maximus' on going medical costs. We'd also like to raise awarness for Spina Bifida Myelomeningocele. Maximus' case is under the care of a team at CHOC that consists of his nuerosurgeon, urologist, gastroenterolgist, cranial tech, prosthetic specialist, and physical therapist. Maximus was born on 1/9/2014 and diagnosed with a rare type of spina bifida called Lipomyelomeningocele. He had his first surgery on 5/5/14 at not even 4 months of age. His case becomes complicated with tethered cord syndrome. We do not know the chances or outcomes for his condition and take it day by day. After a mostly successful, first of many, surgery, we were told his sacreal nerves s2, s3 & s4 were unresponsive. BY the grace of God S1 & S5 are working! We are praying through his weekly therapy he recovers with at least the ability to walk & regain some control of his bladder / bowel. Currently he is in therapy twice a week, under the care of a nuerosurgeon, a urologist & a gastroenterologist at CHOC. We are very confident in his team of doctors and feel truly blessed to be in the care of such a great hospital. At this time he does not have control of his bladder and bowel and will begin the next round of tests. There are surgery options for him later in life when he is of age to help live with incontinence. Our focus now is to help him be able to walk. With the tethered nerves and lcoation of his limpoma there was no way of knowing if the surgery would hinder him further. His condition affects just 1% percent of babies. We appreciate all donations, prayers and support. We feel God has a big plan for baby Maximus' life, regardless of the outcome from surgery we will provide a great life with an abundance of love. God is our leader in this journey and we feel he is using baby Maximus for a greater testimony. Inspiration. We will continue to fight and give Max any and all opportunities to be a Miracle for Spina Bifida awareness. We have the best neurosurgeon at CHOC who believes Maximus will have a good chance at a great recovery! We truly believe Max has blessed us and given us something to fight for. To show the world the strength of a champion. Please help us as we raise money for his resources and continued care for baby Maximus on his miraculous journey!
01/2015: Happy new year everyone. Maximus is 1 and conquered his first year. We learned alot this year and have dealt with some pretty heartbreaking news. We also have a better idea of how to help him continue to thrive. Maximus cpmpleted his cranial therapy and no longer needs to wear his helmet. But in its place he will be gaining ankle braces. Maximus has nuerogenic bowel and bladder (paralysis or incontinence) meaning that with the lack of sacral nerves working he is unable to control most his bowel and bladder. He is however, despite loss of sensation in his legs, able to sit, stand, crawl and even climb and walk. And for that we praise God. He will need his ankle braces (SMO's) to help him learn to walk since he does have loss of sensation in parts of his feet. We are told that over time and with continued surgery to untether his cord that unfortunately his loss of sensation will become greater as thiose nerves continue to weaken, and eventually he will probably be wheelchair bound. But we are working hard in therapy and will take as many good years as we can get. Maximus is a truly happy soul and handles this proabbly better then we do. Later in life there are surgeries to help him with his bowel and bladder as well as drs to help him learn to self cath. We do not see any of this as detrimental to him having a healthy and as normal as possible life. Its not easy, but it was never promised to be. We live each day at a time and make the most of each of them. We are incredibly humbled and blessed and thank you all for your support. We continue to need help with his medical expenses and appreciate all donations and sharing his story! God bless!
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