76 yr old Mom needs help

I am a 76 yr old Mother trying to care for my disabled daughter. I am her sole caregiver. In 2011, she was bitten by a tick. She had been on antibiotics for 19 yr, leaving her with a severely compromised immune system. She wasn't treated for 11 mos. By then, the bacterial infection had entered her spinal fluid and brain.  She contracted Ehrlichiosis Chaffeensis, Rickettsia, and prob. Lyme. She caught Coxsackie B4 virus (a cousin of polio). She's lost most use of her left side. On her good days she uses a walker and on bad days, she has to use a wheelchair which I push. During one of her numerous Hospital stays, she contracted Vanc.-resistant C. Difficult. She fought it for 3.5 years but ultimately needed 2 Fecal Matter transplants to save her intestines and her life.
She was left with adhesions/scar tissue throughout her intestines and can no longer absorb nutrients from her food without an enteral food RX. It costs $1600/Mo but we got a pharmaceutical scholarship from the manufacturer. 
It costs $198/Mo. We can't afford it.
We have both worked our entire lives, helping others. I am an RN.
I worked until I was 75 (last year). I have 2 titanium knee replacements and arthritis.
I have to help my daughter bathe and dress. I cook, clean, and do all the housework. My daughter can't drive because she has fused discs in her neck, had a grand mal seizure, has double vision, and post viral syndrome.
She was an active trial lawyer before she was bitten by the tick.
She worked at a shelter for abused women and children; when in undergraduate school, she ran a childcare program for low income and disabled children.
I have cared for people my entire life.
I need help. I am having trouble loading and unloading her walker and wheelchair. 
I can't afford her RX @$198/Mo. that allows her to digest food. We get $3/day for food, and I am trying to save our home.
I am terrified of leaving her without care, medicine, and homeless.
Before the ACA, I went through my life savings of $120,000 on her medical bills. I took her to the Mayo Clinic and am still paying that bill.
I have already lost my only other child-her brother, when he was 19, she was 14, and I was just ,39.
I lost my husband of 40 years to cancer. I can't lose my daughter.
I am trying to keep my home. Not only is it my last link to my son and husband, but because I am worried about leaving her homeless.
Please help me. I have to raise $198/Mo for her EnteraGam and raise money for food, and my home.
I want to be able to die in the same bed as my husband and leave my daughter in as little debt as possible.
Anything will help. Thank you so much. She is my heart.

Donations (0)

  • Martha Heinicke  
    • $198 
    • 9 hrs
  • Meghan Dougherty 
    • $50 
    • 1 d
  • Anonymous 
    • $20 
    • 2 d
  • Stephanie Green 
    • $50 
    • 3 d
  • Nils Rosenberg 
    • $75 
    • 6 d
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Organizer

Carolyn Evans 
Organizer
Louisville, KY
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