Ryleigh was airlifted to Lubbock, TX, after going into status epilepticus on Tuesday, December 3rd. She spent four days in the ICU being treated with Propofol. After those four days, they tried to wean her off sedation, but she wouldn’t wake up. She was then airlifted to Denver on Saturday, but it was too late. The damage had been done. Upon arrival in Denver, her stats were not good. Blood work showed high acid, kidney, and liver levels. The doctors told Jenni that Ryleigh had developed PRIS due to being on this medication at a high dose for too long.

Saturday night, Ryleigh went into tachycardia multiple times throughout the night. After seeing her EKG, the doctors informed Jenni that if Ryleigh coded again, they would more than likely not be able to get her back. They told Jenni she would have to consider putting Ryleigh on ECMO if she wanted a chance at recovery. Sunday morning, Ryleigh coded again. After watching hospital staff perform unsuccessful CPR, Jenni had to make the split-second decision to put Ryleigh on ECMO. After ECMO, her kidneys continued to shut down, so they started her on dialysis. Not long after that, they discovered she had internal bleeding in the GI tract and a necrotic bowel. At this point, Jenni had to make a very difficult decision, one no parent should have to make. Sunday night, Jenni withdrew care and held Ryleigh in her arms as she went to be with Jesus.

Ryleigh was a beautiful soul with a big personality, full of life, and strong in spirit. Her loss has left an unimaginable void in our hearts.

Ryleigh's mother, Jenni, is a single mom who has always been a pillar of strength, especially in facing the challenges and joys of raising a special needs child. As she navigates this profound loss, she is also facing funeral cost, significant medical bills and the added stress of the holiday season.

We are reaching out to our community for support during this incredibly difficult time. Any contribution, no matter how small, will help Jenni with medical expenses and provide some relief as she tries to give her family a semblance of Christmas joy amidst their grief.

Please consider donating to her and her family. Thank you for your kindness and generosity and continue to prey for Jenni and her family.