
Baileys medical fund
Donation protected
Hi, my name is Cali. I am the mother of two amazing boys. Over the last 4 years my family and I have been through hell. When I went to the anatomy scan for my second born son, we found out there was something wrong with his kidneys. My doctor said he had never seen anything like this before and, "it was very concerning". I was referred to a high risk doctor who monitored my son's health for the remainder of my pregnancy. All this was going on while our older son had just been diagnosed with autism. It was a very overwhelming time and my mental health was not good. We somehow got through it, and our little miracle child was born.
But a week before he was born my husband suffered from a work injury, flipping our whole world upside down once again. Once our son was 6 months old they did a thermonuclear scan to see what was going on with his kidneys. The test itself was torture, and I felt beyond terrible putting my baby through that. But they found that our son Bailey had a congenital megaurter. Affecting 1 in 10,000 kids his age. Along with his kidney hydronephrosis that was causing his kidneys to slowly fail. At the moment they're doing ultrasounds every 6 months to monitor his kidney function. We just got the results from his genetic testing, which came back negative. (Meaning there's no genetic abnormalities.) He currently is not gaining weight normally and has been diagnosed with failure to thrive on top of all this. (He is the size of a two year old, and turns 4 in February.) Our doctor had mentioned that we are welcomed to get a second opinion, and I would love to. Unfortunately, I was planning on using my extra money I would make this peak season to do so... however, our landlord decided to raise our rent the month after Christmas. Which, totally messed up my plans. I won't go too much into detail... but "they" have done everything in their power to make my living situation completely miserable. Which has made me realize, we need to find a new place to live because I refuse to rent from someone like that. Luckily, my mother in law is letting us rent her house this coming February. So for the first time our family will not have to share a one bedroom apartment. I am extremely grateful but this expense will make us be even more paycheck to paycheck than before. I am currently working as many hours as humanly possible. I am sore most days, but refuse to give up. This is leaving us with no extra money to get a second opinion. We are also fortunate that my husband's step brother is leaving us with a full living room set. Otherwise, we would be moving with basically no furniture to fill our house. Due to my husband's work injury he had to get two ankle reconstruction surgeries. The second surgery caused him to suffer from a P.E. which lead to a bunch of other issues. It ended up triggering a rare underlying kidney disease that he NEVER had any issues with before he was hurt. From that he had to go through two rounds of chemo. He was in and out of the hospital countless times and is lucky to be alive. We have put Bailey's health issues on the back burner to save my husband's life. We have taken out a loan and maxed out my credit card to be able to survive. Now we have to do what is right and give Bailey the best fighting shot we have. I would like to be able to take my son to see a pediatric urologist in the bay area. (That's the closest one.)
I would also like to not spend every waking moment at work. I would like to be able to spend time with my sick child and husband because life is short. I feel like I am working away my life and struggle with the mom guilt. I know that Bailey may not have very long on this planet and would love to spend more time with my family. Please consider donating to us, the money donated will be used for a second opinion and to help us move into our new house.
Organizer
Cali Campos
Organizer
Reno, NV