- M
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Hello friends.
As an update to Rainier’s care I am going to change this gofundme me to reflect that from now on Wolf and I have separate funds. We are working on a plan to separate what has been donated already. Moving on this fund will help Rainier and I experience this journey through Leukemia treatment.
As most of you should know Wolf and I have been separated for almost 3 years. And we share a love for Rainier and parenting him. Co-parenting is hard, our son being diagnosed with Leukemia is harder, combined it’s a steep hill. We appreciate your support. If anyone has questions feel free to privately reach out.
You can donate to Wolf and Rainier at www.gofundme.com/wolf039s-living-expenses
I have an endless amount of appreciation for the support we have received and will continue to receive in many ways.
Lizzie 2/24/19.
On December 26, Rainier was diagnosed with type b-all leukemia, it is present in his spleen, testicles, and bone marrorow. Thankfully it is not in his spinal fluid or brain. He is also now severely anemic because of the hemoglobin/red blood cell counts. As far as the cancer goes b-all is a more common and treatable type (nbd right?). Because it is also present in his testicles he is a higher risk. The testicles are considered a hideout for leukemia and can require longer treatment or extra chemo to get rid of the disease. We also learned that he has retinal hemorrhaging behind his eyes. This could be a side effect of a low hemoglobin or it could be something completely different not due to cancer and we will cross that bridge when we get there. Wow, this is hard. Rainier started his chemo treatment in Vermont on December 27th. Our treatment could realistically be about three years. Some of that time will be intensive time in hospitals, some will be outpatient visits to clinics, and the last part will hopeful just be a once a month outpatient visit for "maintenance" till he is cleared and in remission. No matter what this is going to change our lives for the next couple of years. Rainier's immune system will be compromised in such a way that he will not be able to return to school for the remainder of the year. We will be spending a lot of our time at UW in Seattle once Rainier is safe to fly back across the country. The oncology program here in Vermont works directly with the program in Seattle. So our care will transfer seamlessly and his treatment program will remain the same. His parents will be missing a lot of work in the first few months while helping this amazing kid feel safe and begin to heal. We have so many friends we are beyond lucky in the love and support we know we will have and that makes all of this just a little easier. We know we are not alone. Many of you have already made it clear you are ready to do whatever we need for help. Right now his health is at a very high risk as the chemo destroys the leukemia his immune system is also completely destroyed. He is considered neutropenic meaning his neutrophil count is so low his immune system is not responding. We will soon become experts at clean-freaky germ free lifestyles. Which is pretty wild and waaaaay different than how we live our lives. There will be big changes and we will deal with them all as they arise. What can you our community do? Many friends have asked about donating to our family. We are in the process of understanding what his insurance will cover, its looking like is UnitedHealthcare coverage is quite good which is extremely relieving. And we have applied for financial assistance in the sate of Vermont to cover anything extra. We made this donation fund for Rainier's ongoing needs outside of the big hospital bills. Some of which would be: 1. High quality air filters for both his homes. 2. Travel expenses from Olympia to the hospital in Seattle. 3. Many many cleaning supplies for our new sterile lifestyle. 4. Homeschool tutors. 5. Covering costs of overnight stays in Seattle during treatment. 6. Upgrading our kitchen cleanliness, food preserving needs, vegitable peelers, to help deal with his new diet needs. 7. And many, many other hidden costs associated with his diagnosis and the length of treatment. You can educate yourself and read more about what’s going on for him at this website which is put out by the oncology program Rainier is now in: https://childrensoncologygroup.org/
We will keep moving forward and do whatever needs to be done. Thanks for loving Rainier, his mama, his papa and our family near and far. Rainier is the most amazing kid and we are all so lucky to have him in our lives. We are wizards from hearty stock and we will get through this. Much love, The Mithrandir family.
As an update to Rainier’s care I am going to change this gofundme me to reflect that from now on Wolf and I have separate funds. We are working on a plan to separate what has been donated already. Moving on this fund will help Rainier and I experience this journey through Leukemia treatment.
As most of you should know Wolf and I have been separated for almost 3 years. And we share a love for Rainier and parenting him. Co-parenting is hard, our son being diagnosed with Leukemia is harder, combined it’s a steep hill. We appreciate your support. If anyone has questions feel free to privately reach out.
You can donate to Wolf and Rainier at www.gofundme.com/wolf039s-living-expenses
I have an endless amount of appreciation for the support we have received and will continue to receive in many ways.
Lizzie 2/24/19.
On December 26, Rainier was diagnosed with type b-all leukemia, it is present in his spleen, testicles, and bone marrorow. Thankfully it is not in his spinal fluid or brain. He is also now severely anemic because of the hemoglobin/red blood cell counts. As far as the cancer goes b-all is a more common and treatable type (nbd right?). Because it is also present in his testicles he is a higher risk. The testicles are considered a hideout for leukemia and can require longer treatment or extra chemo to get rid of the disease. We also learned that he has retinal hemorrhaging behind his eyes. This could be a side effect of a low hemoglobin or it could be something completely different not due to cancer and we will cross that bridge when we get there. Wow, this is hard. Rainier started his chemo treatment in Vermont on December 27th. Our treatment could realistically be about three years. Some of that time will be intensive time in hospitals, some will be outpatient visits to clinics, and the last part will hopeful just be a once a month outpatient visit for "maintenance" till he is cleared and in remission. No matter what this is going to change our lives for the next couple of years. Rainier's immune system will be compromised in such a way that he will not be able to return to school for the remainder of the year. We will be spending a lot of our time at UW in Seattle once Rainier is safe to fly back across the country. The oncology program here in Vermont works directly with the program in Seattle. So our care will transfer seamlessly and his treatment program will remain the same. His parents will be missing a lot of work in the first few months while helping this amazing kid feel safe and begin to heal. We have so many friends we are beyond lucky in the love and support we know we will have and that makes all of this just a little easier. We know we are not alone. Many of you have already made it clear you are ready to do whatever we need for help. Right now his health is at a very high risk as the chemo destroys the leukemia his immune system is also completely destroyed. He is considered neutropenic meaning his neutrophil count is so low his immune system is not responding. We will soon become experts at clean-freaky germ free lifestyles. Which is pretty wild and waaaaay different than how we live our lives. There will be big changes and we will deal with them all as they arise. What can you our community do? Many friends have asked about donating to our family. We are in the process of understanding what his insurance will cover, its looking like is UnitedHealthcare coverage is quite good which is extremely relieving. And we have applied for financial assistance in the sate of Vermont to cover anything extra. We made this donation fund for Rainier's ongoing needs outside of the big hospital bills. Some of which would be: 1. High quality air filters for both his homes. 2. Travel expenses from Olympia to the hospital in Seattle. 3. Many many cleaning supplies for our new sterile lifestyle. 4. Homeschool tutors. 5. Covering costs of overnight stays in Seattle during treatment. 6. Upgrading our kitchen cleanliness, food preserving needs, vegitable peelers, to help deal with his new diet needs. 7. And many, many other hidden costs associated with his diagnosis and the length of treatment. You can educate yourself and read more about what’s going on for him at this website which is put out by the oncology program Rainier is now in: https://childrensoncologygroup.org/
We will keep moving forward and do whatever needs to be done. Thanks for loving Rainier, his mama, his papa and our family near and far. Rainier is the most amazing kid and we are all so lucky to have him in our lives. We are wizards from hearty stock and we will get through this. Much love, The Mithrandir family.