Baby Baker - Bronchial Atresia, Medical Assistance

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Baby Baker - Bronchial Atresia, Medical Assistance

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Our daughter, sister, cousin, mom and friend explains it best in her own words the battle Baby Baker is facing. The family has been working hard to keep life normal for their family while facing an unknown future when it comes to Baby Baker. Any assistance to help with the medical cost will be greatly appreciated. From Baby Baker’s Mom:Baby Baker update:The news yesterday was not as good as we were hoping. Incoming long post. Our baby has Bronchial Atresia, a condition where the airway of one or more of the lobes of a lung is blocked causing accumulation of tiny cysts or pockets of fluid in the lung. Because of this accumulation the left lung is enlarged and has pushed the heart all the way to the right wall of the rib cage. This can cause the heart to strain and with the size of the mass could cause heart failure in the baby and if it gets bad enough I would have the same symptoms (mirror syndrome). This was not evident during our appointment. Additionally, the cysts are compressing the airway and the feeding tube. They are both working at the moment but not to their full potential. Because the feeding tube is pinched the baby is not swallowing as much amniotic fluid as it should, this is causing a build up of fluid around the baby. The risk with this is that my body thinks it is more pregnant than it is and it may cause preterm labor. They are also unsure if this is a hybrid mass or not. This could mean that part of the mass is Congential Pulmomary Airway Malformation (CPAM). If that is the case steroids may be able to shrink the mass. If it is not both CPAM and Bronchial Atresia there is no non-invasive way to treat the mass. Bronchial atresia is not known to shrink, like CPAM, but rather it may grow. Our hope is that the baby's chest cavity grows faster than the mass to account for space. I have already taken the steroids. If it works we will know it is both. So, the plan is this. We monitor the mass size, heart failure and fluid around the baby on a weekly, sometimes bi-weekly basis. If the baby does go into heart failure or I go into preterm labor the surgeons will attempt to open the airway by putting a scope down it's throat, in utero. If that doesn't work they will need to a lobectomy (removal of the lung lobe) on the baby while in the womb. If this happens I will have to relocate to Cincinnati for the remainder of the pregnancy and the babies stay in the hospital. If the chest cavity grows faster than the mass and the baby does not develop these complications I will be relocated around 34 weeks (I am 22 weeks now), in case I go into labor but we will try and go full term. They will do what's called an EXIT to resection. This is where they will do a c-section, leave the baby attached, put the baby on a ventilator and perform the open lobectomy. Once they are finished the baby will be in the NICU for a while, unsure how long. We will keep everyone updated as we hear from the family. Thank you!!

Organizer and beneficiary

Bobbie Wraight
Organizer
Indianapolis, IN
Mia Baker
Beneficiary
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