AJ's medical bills

In the last 2-3yrs we have been saying something is off with AJ, that he hasn't been acting like his normal happy self. Within the last year and a half or so he's been having these migraines accompanied by vomiting. He also has had hand tremors, focal seizures, frequent urination, a new need for glasses and early puberty. On March 9, 2016 I took AJ to a sick visit because he had been having more frequent migraines/vomiting causing him to miss more time then allotted at school. They suggested we get an MRI and blood work done. The blood work was done that day but the insurance had to approve the MRI. The next day he was feeling better so I sent him to school. Ten minutes later the school called and said he's throwing up and needs to be picked up. I called the pediatrician and they explained that they would try to rush the MRI test. I got the call that I could take him in at 3:40pm. This day would be the start of a whirlwind for our family. He had the scan, the radiologist read the results to the pediatrician. They said I needed to talk to the doctor on the phone before we could leave because it was a STAT MRI. I took the phone and listened to what they said was going on, "Mrs.Haydak I am so sorry to tell you that Alexander has a very large mass on his brain as well as fluid build up. We now know what was causing the migraines/vomiting. We need for you to take him to Children's hospital as soon as possible for further testing." My heart sank, I felt like I was going to throw up myself. I was unsure what to say or do. All I could get out was "thank you". I called my husband to explain what was going on and set up arrangements for our other two children to be looked after while we make the trip to A.I.DuPont Hospital of Delaware for children. AJ was put in triage for about an hour and a half. We then went to a room in the ER for about three hours, he was given neuro checks almost hourly to check function of hand/arms, feet/legs and eyes. He was admitted to the PICU (pediatric intensive care unit). We were told that the neurologist would be in around 7am with more information on what's going to happen with our son. In the morning we were seen by a number of specialist from a neurologist to an opthalmologist as well as an oncologist and an endocrinologist. They all told us what their opinions were and what would happen in their field of expertise. The neurologist explained that what AJ had was a tumor that was most likely benign due to the size and his symptoms. He told us that he needed to do a biopsy to get answers as well as put a shunt in to help the fluid flow in his brain and drain through to his chest. Thursday night he was admitted, Friday everything was explained multiple times and Saturday was the day of the surgery. Saturday came and we were all very impatient, just waiting for the anesthesiologist to come in and prep him for the procedure. They finally came in and gave him something to calm him before going to the OR. My husband and I walked with him to the OR, gave him a hug and kiss and told him we loved him very much and at that point they wheeled him away and said "we will see you in about 3 hours" I lost it, my child, my first born was getting his brain cut open. I just can't put how I felt into words, it was the longest 3hours of our lives!Finally the 3hours were up and he was wheeled to the room in his bed. He looked lifeless in that bed, it was the most gut wrenching feeling waiting for him to move his hands and legs. When he came to he saw all of us standing over him, all of the love in that room was unbelievable. He squeezed my hands as hard as he could, his left side was weak. He reached out and tried to hug and kiss me. He wanted his mommy and daddy right away. ❤ He was finally able to talk with a scratchy voice and slanted mouth but it was a blessing for him to be able to move and talk!The results were benign and pathology reports could take two weeks for a formal diagnosis. He was able to get out of bed and felt better on Sunday. Monday he was vomiting every time he got up, it was heartbreaking. Tuesday he felt better and was able to go home. Follow up appointment was set for March 29th. At his follow up we found out that his tumor had a name, it was a juvenile pilocytic astrocytoma grade I. This is the most benign tumor a child can have so we were very grateful to hear that. He will have to go back on April 29th for a full scan of his head to measure the tumor and see it's growth from 6 weeks time. From there they will decide when/how long to do radiation to shrink it. At this time his tumor is "not a candidate for removal." I started this page because with my health insurance we have a $10,000 out of pocket to meet. I have had numerous people send gifts/cards/money for AJ and we want to thank all of you from the bottom of our hearts! We are so grateful that there are so many people willing to help out in our time of need. We appreciate anything sent as well as prayers for our son AJ. Thank you everyone, I will update after his next doctors appointment on April 29th.