Strength For Carter

November 6, 2014 I gave birth to a perfect baby boy Carter Stefan Tinsley.  I felt like my world was totally complete. Then exactly one week later, I got a phone call from Carter's pediatrician that something came up in Carter's newborn screening. I had no idea what was going on, but I was to report to Hackensack UMC for another test. You can imagine my mind was all over the place and heart racing the entire time driving to the hospital. I met with doctors and we repeated the test. The results came back in one hour saying Carter was diagnosed with SCID(Severe Combined Immune Deficiency). Instantly I was heartbroken, it was something I have never heard of and didn't know if there was a cure. They then told me that it basically means he was born with a low count of white blood cells meaning he had a weak immune system. I then was informed that the specific type of SCID Carter has was an extremely rare form where until this date he is the only one in the United States with this kind. His doctor had to reach out to other physicians overseas to see what they did for their patients. He found out that there were 8 other cases like Carter's. He then told me that the Carter would require a Bone Marrow Transplant as treatment. My life totally changed. I had to keep Carter isolated from groups of people so he wouldn't get sick until his transplant date and days after as well. This including missing out on family functions, and realizing that I now cannot go back to work because I have to be with Carter 24/7 since he's not allowed to attend daycare. This was a huge pill to swallow because I never in a lifetime thought I would be going through so much at such a young age especially after having such a great pregnancy. But I stood by Carter side every step of the way, he received his Bone Marrow Transplant June 4, 2015 and it went extremely well. He is a strong little trooper who fought through the transplant so easily. He is still hitting bumps here and there, but is trying his best to fight through everything that is coming his way. I decided to share my story finally after being quiet for so long because I realize that I will have to have more time off than I thought. I was told that after 100 days from transplant my life would basically return to normal but that isn't the case.  We still come to the doctor 3 times a week and been inpatient 4 times since transplant including right now. He is currently fighting off a respiratory infection. I'm here asking for prayer for my son most importantly and any monetary donations that will be able to help me until Carter is 100% healthy and I'm able to move forward with my career.