Hi, my name is Melinda Reilly and I suffer from chronic pain.On the 15th of May 2009 my life as I knew it had changed forever. 14-year-old me didn’t realise just how much this netball injury would run both mine and my families’ life. CRPS (Complex Regional Pain Syndrome) is a rare and debilitating disease nicknamed ‘the suicide disease’ I have been told that CRPS has no cure. For the past 2 years, my CRPS and mental health have deteriorated and unfortunately, I had to resign from my employment. I need to take opioids for pain relief and medication for anxiety, depression and sleep. Sleep deprivation is another trigger for CRPS suffers. I have had many admissions in hospital for Ketamine Infusions to help with the pain. I have now come to a point where the high usage of drugs have actually exacerbated my condition.For close to ten years, everything I planned and hoped my life would be, has been taken away from me. At the very least, all I wanted was independence. I now live with my parents.Until now I have accepted this, as how my life will always be. While surfing the web for miraculous cures, as has been done time and time again, however, this time mum found something worth investigating. An out-patient clinic, ‘The Neurological Relief Centre’, Fayetteville Arkansas, USA where they have had many successes with CRPS sufferers, using a multi- disciplinary, non- invasive approach to treat the nervous system. The treatment consists of an intensive program from 9am- 6pm, four days a week. I can expect to undergo physical therapy, chiropractic care, genetic testing, toxicity testing, neurological therapy just to name a few procedures to help correct my nervous system. But there is a catch, the cost of the treatment, travelling to the US and staying for three months is a costly exercise. My parents are more than generous, offering their life savings to get me the help I need. While I am appreciative, I am hoping that the public could please help me in my journey.I am totally outside of my comfort zone asking for help especially financial help. I am hoping my friends, family and any other kind souls are willing to donate a few dollars to help me out. The treatment will cost upwards of $45,000AU and accommodation and travel will be costing upwards of $25,000AU. I know and appreciate that now is not a good time for anyone financially, but I would be forever in your debt for helping me become pain free.I will be keeping a blog to bring you all along on my journey, to a pain free lifestyle. It has been almost 10 years since I have had a day not thinking about the consequences of my pain and the pain itself. I would like loved ones there with me, if not in person then in spirit, for the very first day I can say ‘I am pain free’. Lots of love,Melinda xxSites for all to look at to understand my treatment and the CRPS conditionhttps://seeingyouwell.com/https://rsds.org/groundbreaking-non-invasive-approach-crps/https://drkatinka.com/https://painmatters.wordpress.com/2017/08/04/thanks-to-dr-katinkas-non-invasive-treatments-many-crps-patients-are-enjoying-significant-recovery-from-crps/ https://youtu.be/zZhWVEn4uHUhttps://www.facebook.com/TheNeurologicReliefCenter/ 2011 TED presentation by Dr Elliot Krane explaining CRPShttps://ed.ted.com/lessons/the-mystery-of-chronic-pain-elliot-krane#review
Co-organizers (3)
Melinda Reilly
Organizer
Leanne Reilly
Co-organizer
Joanna Reilly
Co-organizer