Healing Willow’s Brain Injury

Update: Treatment sessions have been scheduled and paid for, hotel has been booked and paid for. We leave in 73 days. I’m nervous. But I am so hopeful for a full healing in Gods mighty name. Thank you so much to everyone who has already donated, shared, prayed, reached out. Please keep the prayers and encouragement coming as we embark on this journey to a successful future for our sweet girl. ❤️‍ I have lowered our goal amount now that I know for sure costs. We’re dropping physical therapy which makes the out of pocket cost for HBOT and Neurofeedback $4762.50. The hotel came out to $2665.64.

I am not a joyful receiver. I HATE asking for help.. I’m the type of person who will move a refrigerator solo. With a baby on my hip I have been asking God to make me a more joyful receiver for some time. And of course, our God ALWAYS comes through. Just maybe not in ways that we would have hoped for.. Today, I am asking for help. And I, along with my entire family (and others), would be doing a happy dance, and giving sighs of relief to receive some support in our journey.

On June 6th 2021 we were eating breakfast on our patio when Willow fell from her high chair and sustained a skull fracture. At the hospital we were monitored over night and told no neurological follow up would be needed. We were told she would heal and return to normal with no intervention. The month following the accident Willow could not stand bright lights or much noise. She was easily overwhelmed and overstimulated. She cried often. Having a couple family members at a time over to our home resulted in tantrums. Outings were a hard no. Our clumsy 2 year old got a whole lot clumsier over night. I made appointment after appointment with our pediatrician to voice my concerns, who continued to tell me she was “fine”. I finally heard the words “post concussive syndrome” 3 weeks later. But was still assured she was perfectly healthy and “fine”. This went on for 6 months. I made appointments concerned about my daughter behavior. I was told she’s “fine” and age appropriate. And then our pediatrician got visibly upset with me at an appointment for my continued concern. We then switched pediatricians who put in a referral for occupational therapy and physical therapy at our new patient appointment. Praise the Lord! This was when our journey finally took a turn towards healing. We waited 9 months for these referrals while my child continued with strong emotions, outbursts that turned aggressive, impulsivity, sensory processing issues, coordination issues, unidentified visual disturbances, and more. During this time I hit the books. I wanted to know all I could know about brain injury so that our daughter had the best chance. I’ve learned ALOT. And I’ve been able to advocated for a lot of her treatment already. And now, the reason for our asking for help. We have been given the opportunity to do hyperbaric oxygen, neurofeedback and intensive physical therapy treatments at a state of the art rehabilitation center that would benefit Willows recovery in a major way. The Oxford center is located in Brighton Michigan which would require us to relocate for 1 month while she does these treatments. These treatments are not covered by insurance, however, The Oxford Foundation has generously awarded us HALF of Willows treatment cost. Which of course is a HUGE help! But our out of pocket pay was still $8512.50. While we would love to be able to include the physical therapy, the clinic said we could drop physical therapy if we needed which would drop our out of pocket to $4762.50. The hotel expense alone for our 1 month stay is looking to be around $3500. I am still looking for the best rate and option there. Jamie will have to stay back at home to work, so it’s going to be extremely hard for us to all be away from each other for so long, and very stressful for me being alone in a new state with the girls, but there is absolutely nothing we won’t do for our children! We have a few credit cards that we will put the costs on, but if any of you would be so kind to help us alleviate some of that debt.. we would be extremely grateful. Thank you for listening. And if you would, please say a prayer for Gods healing hand over our sweet Willow girl.