Support Nessie as she fights CRPS

Our daughter Vanessa (Nessie) is an 18 yr. old Sr. at Jimtown High. She was born premature and has had multiple health issues,epilepsy w/gran mal seizures,low immune system,scoliosis,asthma ,as well as cardiothoraccic surgery at age 15. In June of 2011 she was hospitalized with organ failure ,other then putting her on several meds. to help her continue to function, the drs. could never seem to find the root cause. With meds. and physical therapy she was able to have a grace period. Then in october of 2012 nessie had to be hospitalized again with organ Failure and severe pain, this time it affected her left leg, after an mri the drs. also discovered an adenoma. She then spent the month of january 2013 at the cleveland clinic,their she was diagnosed with crps and with new meds. treatments and intense physical therapy she was able to return to school (after missing 95 days). Since she was feeling better(in remission)
, she decided to try out for color guard(it was her first time being able to participate in a school sport) we were a little nervous about it ,but supported her. She worked hard during practices and learned to cope with her pain and had physical therapy 3 times a week. In oct. 2013 Vanessa was marching out to the field and felt her left foot explode, it was an excruciating pain and she felt like a knife had went thru her foot. We took her home and gave her pain meds. , but by the next morning her foot swelled up to twice the size and she had no feeling in her toes. She couldnt even soak it in water because it burned her skin, from this point on she could no longer wear a shoe. We tried every treatment possible acupuncture,deep tissue massage,spinal nerve blocks,tens unit,etc. Other then help with minor swelling,these treatments did nothing for the severe pain that she was experiencing. After Mri's and Xrays drs, found more problems not only is Vanessa in full CRPS flare up (complex regional pain syndrome),which has no cure, but they also believe she has Ehlers Danlos syndrome (EDS) Vanessa,s pain has now gone from her foot to her calf and now onto her hip,shes also beginning to experience hand cramping,Nessie also suffers from scoliosis as well as other back problems ,so getting comfortable has not been easy. She is now on crutches ,but is having difficulty with that because of her pain.As of now, We have 2 new options for treatment- Prolotherapy and Calmar scrambler therapy,Unfortunately neither of these treatments are covered by insurance. PLEASE help our Nessie get the treatments that can help her get back to her smiling happy self. The pain has become completely overwhelming for her and we need to act fast as she is continuing to get worse. We know that God has a plan for Vanessa and we have faith that he will bring her thru...as an infant we were told that she would have a lifespan of about 2 years, well she's proved the Drs. wrong :) Help her to continue to do so! Vanessa has an appointment on Jan. 20th for the calmar pain center in Rhode Island, please help make this possible. God Bless, Mark and Anna Tice
  • BLET #335 
    • $250 
    • 88 mos
  • Anonymous 
    • $25 
    • 88 mos
  • guy barto 
    • $25 
    • 88 mos
  • David Hall 
    • $25 
    • 88 mos
  • JJ Balonek (div815) 
    • $50 
    • 88 mos
See all

Organizer

Anna Tice 
Organizer
Elkhart, IN
  • #1 fundraising platform

    More people start fundraisers on GoFundMe than on any other platform. Learn more

  • GoFundMe Guarantee

    In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more