Hi my name is Tiffany. I am 44 years old. I need a double lung transplant. It's scary, even daunting, to contemplate. As you can imagine even with insurance this is a very expensive procedure. I was diagnosed with interstitial lung disease in July 2019 and in July of this year 2021 I was told I have Short Telomere Syndrome which led to idiopathic familial Pulmonary Fibrosis. I have had genetic testing and have been found to have the TERT/TERC mutation as well as STS. My aunt died of Pulmonary fibrosis. I have been on oxygen 24/7 since April of this year. Thankfully my oxygen requirements remain stable at 2L O2 at rest and 8L O2 on exertion. I have 16% respiratory function. I am taking Ofev and I am enrolled in a clinical trial at TGH. I have less than a year and a half to live/transplant time. I need a transplant to live. I love life and I want to live. I have not been placed on the transplant list as of yet because my BMI needs to be under 30. I am working on it and I am well on my way. I have lost 20 lbs this month! SS disability and Medicaid will not cover a lung transplant. I need to remain commercially insured. My employer does not offer short or long term disability at this time. So I am toughing it out to keep my insurance.

If you know me, you know I like to think I am super tough and can get through this. I just need a little bit of your help to make sure everything is covered.

If you can't donate and If you're not a donor yet, I ask that you please look into it and know that one person can save eight lives. Please consider becoming a donor and fill out your donor card because you do need to give consent.

If I make it through this, and I know I will, I will pay it forward by remembering the golden rule and making every breath count.

Your donations will guarantee that I am is cared for and can cover the costs of this. Any amount is greatly appreciated, and even if you can’t donate at this time I ask that you please share this post. Thank you for taking the time to read this and I hope you have a wonderful day. xx Tiffany