Dear Friends, family and all those who have so generously supported our family during this difficult time -
Unfortunately, Carolyn's preliminary diagnosis was made conclusive.
It now has a name - Creutzfeldt Jakob Disease (CJD). We don't know why or how this happened. What we do know is that it's a devastating diagnosis, that has no cure and unfortunately no treatment.
We are utterly heartbroken by the news. Never in our worst nightmares did we imagine a situation where she would be thrown into a fight for her life, without a weapon. Carolyn deserves better than this. She deserves the chance to fight. And it's unspeakably painful that we have no options to explore.
If you know Carolyn, you know that she's as strong as they come. For many of us, she's been the one by our sides during the most difficult situations - helping us fight, cope, grieve, and manage. She's been there at our bedside, in waiting rooms, talking to doctors, at our homes - with food, advice, or just a comforting look and a warm embrace. So, while we can't fight on her behalf, we will continue to support and love her with everything we have, and make sure she and Bill have what they need to brave this tragedy with dignity and peace.
And we as a family will do our best to channel her compassion, positivity and strength and get through this nightmare the way she would want us to.
We can't thank you all enough for the outpouring of love and support - both emotionally and financially. Times like these are made a less unbearable, when you look around and find yourself surrounded by a loving community. For that, we are grateful and lucky.