Hannah's Batten Fund

Hannah is defying all the odds. She is so tenacious. She knows what she wants, and she is incredibly smart. So, she can tell the difference between what she can do, and what she used to do. But she can live a whole and happy life, as long as I can help her! Hannah has Batten disease, CLN-3, and she is getting younger in her mind, and we are doing our best to help her. There is no cure. We are lost but hopeful, for anything is possible through God. Hannah has a vivid imagination and I am her caregiver, but the state has given her one hour of paid service per day, and she is a full time kiddo. So we make $11.50 per day. We are almost able to pay our bills. I want the best for Hannah. She was a healthy and happy baby and child. She was only diagnosed a few months ago! I am so lost. I had a healthy child, and now she has a disease with no cure. Hannah plays well and loves toys and friends. She is regressing and would love a visit if she knows you personally. I am distraught. I cannot accept that there is no cure. She has such a pure soul. I would take this fate away from her if I ever could. Please, literally anything helps! Thank you!!! We just found out about glasses that read for you! But they cost $2999 plus tax (free shipping) And Christmas is just around the corner...Hannah is a girly girl that is obsessed with toys. She even does her own research on YouTube!! Thank you all who helped us get to Nashville this Summer!! It was life changing and we will never forget how that support helped us through the most difficult time, to date. Thanks to the BDSRA for getting the hotel room for us and all the wonderful experiences we were fortunate to have, thank you all!!! My number is [phone redacted] Email: [email redacted]
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Laura Johnson 
Hemet, CA

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