
Cranial Helmet for Declan
Donation protected
Hi, I am Lara, I am hosting this fundraiser for my son who has both Moderate Plagiocephaly and Brachycephaly. My son's head has these deformations due to needing a vacuum assisted delivery. Unfortunately when the vacuum was placed, it was placed on the back corner of the left side of his head which is where you'll see his skull deformation. In the process of doing so, he had his left collarbone broken, which has help contribute to him favoring that left side making his deformation worse.
Insurance refuses to pay due to it being referred as a "cosmetic condition", disregarding the long term effects.
1. Developmental Delays
A study investigating the development in toddlers with and without deformational plagiocephaly (DP) found that toddlers with DP scored lower on all sections of the Bayley Scales of Infant and Toddler Development, Third Edition when compared with unaffected, demographically similar toddlers. Although this study did not establish a causal relationship, it does indicate a need for greater developmental surveillance.
2. Practical Difficulties
Practical difficulties in sport and everyday life can affect adults with plagiocephaly, as some are unable to wear many types of protective headwear for sports such as cycling and rock climbing. Most helmets and headgear are manufactured around a 'normal' head shape, so for moderate and severe flat head syndrome in adults, individuals may be unable to wear helmets.
In addition to sporting activities, adults may also find it difficult to enter into their chosen profession due to their inability to wear standard head protection. This includes adults wanting to work in construction, the emergency services, and armed forces.
3. Psychological Impact
Flat head in adults and children may have a psychological impact later in life. A misshapen head brings a number of psychosocial concerns and emotional difficulties which a person may face throughout school and into adulthood.
Unfortunately though, moderate and severe plagiocephaly will not correct with repositioning and sometimes won't even be improved at all, instead requiring other forms of plagiocephaly treatment, such as the TiMband. However, once a baby reaches the age of 14 months, the bones in the skull have hardened and the growth rate slows dramatically. This is why any form of plagiocephaly treatment for adults, children, and older babies is not offered.
4. Medical Issues
Children who grow up with plagiocephaly, like craniosynostosis, will likely require healthcare observation to manage ongoing or new problems. Congenital plagiocephaly, which is caused by craniosynostosis, is left untreated, it can lead to serious complications, including: Head deformities, possibly severe and permanent. Increased pressure inside the head which will lead to seizures, along with nasal deviation which will affect his breathing as he gets older.
Unfortunately we are under a short time frame in order to gather the funds to give Declan what he needs since he is currently 6 months, and will need to wear this helmet for at least 4 months in order for it to help him.
For more pictures and videos in regards to Declan and his condition, you can go to
https://www.tiktok.com/@harmony.within101?_t=8lMDVGjygLz&_r=1
Thank you for your time and concern ❤️
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Organizer

Lara Ashcraft
Organizer
Waco, TX