2 Young Brothers With Rare Disease

Please help the family of two young brothers; Nigel 2 and Rowan 4, as they both undergo chemotherapy and bone marrow transplants.

Darren and Dani Lavery are the parents of Rowan (4) and Nigel (2), as well they have 2 other children. They are currently in the middle of trying to prepare their home in Red Deer, Alberta to sell so they can be closer to their boys in Calgary as they undergo their treatment.

At around 9 months of age Darren and Dani noticed that Nigel was not meeting regular baby milestones and had in fact lost some of the skills he once had. After many struggles, tests and 2 lengthy hospital stays at the Alberta Children’s Hospital in Calgary, Nigel was finally diagnosed with Chronic Granulomatous Disease. CGD is a rare genetic disease that attacks his immune system, leaving him susceptible to life threatening infections.

Shortly after Nigel was diagnosed, Darren and Dani were told that a bone marrow transplant was the best option for a cure.
Doctors tested Nigel’s siblings to see if any of them where a match. Unfortunately, at the time, Sydney (16), Ciaran (7) or Rowan (3) were not a match. It was at that time they received the devastating news that Rowan also has CGD.

There was however a silver-lining that day, they found out that Sydney was not a carrier of CGD and would not pass it down to her children.

Currently, both boys are on antibiotics and anti-fungals. This is because their immune system does not work like yours or mine. A common infection can become life-threatening.
Nigel has already had several pneumonias that he was unable to fight off without additional treatment.

The boys were added to the International Bone Marrow Registry promptly after their diagnosis.

After receiving the good news that 2 matches (10/10) have been found for the boys, their journey of treatments and long hospital stays is just beginning.

Nigel (2), the youngest, will start first with his chemo treatments to wipe out his own immune system in hopes that his body will accept the donor’s bone marrow. Nigel’s journey will begin May 1st, his brother Rowan (4) will hopefully start 3 months later.
The Laverys will likely be in Calgary for one year.

This GoFundMe Page has been set up to assist with living costs in Calgary, as well as their other children as they transition to a new city. No donation is too small and all well wishes and prayers are appreciated!

You can also help by donating blood and registering to be a bone marrow donor www.blood.ca and www.onematch.ca
Fore more info on CGD please visit www.cgdsociety.org

Donations

  • Stephen Peters 
    • $100 
    • 17 mos
  • Luisa Figueroa  
    • $100 
    • 20 mos
  • David Scullion 
    • $100 
    • 22 mos
  • Andrew Mcwilliam  
    • $30 
    • 22 mos
  • Naomi Zaman 
    • $100 
    • 22 mos
See all

Organizer and beneficiary

Leana Lavery 
Organizer
Red Deer, AB
Darren Lavery 
Beneficiary
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