I have lived with chronic pain and fatigue for ten years now and have pushed myself to keep working full time to be as independent as the women I looked up to growing up. Along that journey I've had to make significant life changes, find the right medication/supplement cocktail, keep stress to a minimum, and the list goes on and on. This recent battle began at the end of December and has been the hardest and most painful of my life, keeping me out of work for almost 2 months. As of late March after emergency room visits, specialists visits, and one neurologist who completely dismissed me and wasted my time, I have one diagnosis, Trigeminal Neuralgia, one of the worst pains known to humanity. My neurosurgeon and I believe there's even more going on which will have to be addressed by a new neurologist, but soonest I can get in is May. While I've been on meds controlling the Trigeminal pain, I've been having terrible migraines and pressure, with the medication side effects being absolutely killer! I'm no stranger to equilibrium issues having had Meniere's Disease for 16 years, but this has been worse, sometimes I can't even get up at all or the nausea is so bad that it reminds you of that horrible sick drunk you could get when you're young and dumb in your twenties and mixed with what feels like the worst hangover of all time. Just miserable for just wanting to not be in pain. I came back to work at the end of March but have had to call out repeatedly due to the migraines and medication side effects. If I cannot work a minimum of 30hrs a week, I will lose my benefits and will have a much harder time paying for getting better. The way it's looking, I will have to go on FMLA to keep my job and benefits, but it's completely unpaid leave. Even if I'm approved for disability, it takes 3-5 months and in most cases folks are unapproved the first go around and have to file an appeal, and I'm not sure how long that could take. At this point I'm the most scared I've ever been since mom and dad died, this isn't even about just quality of life anymore, it's about basic survival. I don't know what to do anymore, so having already paid $3000 out of pocket this year and not a ton more in savings, I'm asking for help. I simply can't do this on my own and the future doesn't look too bright to even stay afloat unless I magically and abruptly get better. Anything helps <3 If you'd like to follow this journey in more detail, follow my YouTube channel: https://www.youtube.com/channel/UCRbG2jtVmiKGx_hqi0tp_aw
Update 4/28/18: Huge thank you to everyone who has supported us and donated! We're happy to report that we've made our original goal for $3000!
We will be upping the goal due to upcoming expenses for my MRI, multiple appointments coming up, and living expenses. We are also looking at a good chunk of money going towards our dog, Lucy, who will need to go into the vet asap Monday after a large mass showed up almost overnight, and due to where it is, it makes me so nervous. Our pets are our children and like most things lately, this has hit us at the worst time.
Please keep your fingers crossed for my and Lucy's health going forward, anything and everything is dearly appreciated! As always, will keep everyone updated <3