Help us get the treatment they deserve

our twins were diagnosed with Mastocytosis at 2 months old they are now 2 years old mastocytosis is a group or rare disorders caused by too many mast cells and cd34+ mast cells precursors which in some cases can cause leukemia. we fight the fight every day there are many things that we have to avoid such as clothing type,to much sunlight, certain foods heat,cold. all the spots turn to lesions if a reaction occurs and the list goes on we have searched for drs with many turn downs but finally have found one ! and he is referring us to a dr akin in boston for some studies on our twins . we are trying to raise money for travel expenses, medication,and copays for it is not cheap with twins and having to travel so far from home . we thank every one in advance and please share there word