Baby Brook's Battle

Our friend and college roommate, Stacey Holbrook, recently received the worst news any parent can get.  Her youngest son, Brooks, was diagnosed with metachromatic leukodsytrophy.  It is an extremely rare,  genetic, neurodegenerative disease for which there is no cure or FDA approved treatment. (Read more about the disease by clicking the links below) He will turn two in January. The prognosis is poor and the family is understandably devastated.  Currently, Brooks is relatively healthy besides difficulty walking.  However, the disease is expected to progress quickly.  Here's where we come in. We'd like to help Stacey, her husband Tommy, big brother Brady and Brooks in any way we can.  A few of the things we'd like to help with are: a family vacation while Brooks is still healthy enough to travel, family photos, help with medical bills and lost wages from time taken off work.  Any donation large or small is appreciated.  We hope this helps relieve some of the financial burden and lets Stacey, Brooks and fam know how many people are here to support them. 

More info on metachromatic leukodystrophy here: https://en.wikipedia.org/wiki/Metachromatic_leukodystrophy
https://ghr.nlm.nih.gov/condition/metachromatic-leukodystrophy
  • Anonymous 
    • $10 
    • 21 mos
  • Al & Gloria Aldaz 
    • $300 
    • 31 mos
  • Steve Hillmann 
    • $100 
    • 32 mos
  • Les John 
    • $100 
    • 32 mos
  • Anonymous 
    • $1,000 
    • 32 mos
See all

Fundraising team: Megan, Nikki and Alicia (4)

Megan Jones 
Organizer
Northbridge, MA
Stacey Holbrook 
Beneficiary
Alicia Barbieri 
Team member
Nikki Rogers 
Team member
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