Here's their amazing story of how one son's birthmark has lead to another son's brain surgery!
When their 3rd baby boy was born with a unique birthmark, they were told the vascular malformation may actually be growing into his brain, aka Sturge-Weber Syndrome. When Titus was a year old, lesions were found on his brain and he was diagnosised with SWS. But God placed on Mom’s heart that something just didn't add up with that diagnosis.
After an additional year of prayers, numerous specialists, and insurance battles, the doctors agreed that Titus does not have Sturge-Weber Syndrome but an inherited condition called Familial Cerebral Cavernous Malformations.
When the older two boys finally got MRIs it was discovered that not one but all 3 of their children have this mutation that has caused BRAIN LESIONS and has the potential to cause seizures, cerebral hemorrhages, neurological deficits and more.
Their middle son has a lesion that has been bleeding for at least two years (completely without symptoms and would have been undetected if not for his little brother's birthmark). It is currently the size of a golf ball and he is at risk of losing his ability to comprehend language, as well as control of the right side of his face and right hand.
The ONLY pediatric specialist for this rare condition is in Boston, 2,000 miles away from the Nixon's home in Austin. All 3 children will travel with their mom, Julie, in April. They'll be away from home for nearly a month as all three boys get evaluations, MRI’s, and Levi is scheduled for brain surgery.
We are asking for only two things.
First, PRAYERS! Because God is the Wonderful Physician!
Second, we are asking for support for the Nixon Family! Please consider donating to the Nixon family's ongoing medical and travel expenses. We want their family together as much as possible during this process and my goal is raise funds so there's one less stressor on Andy and Julie.
I met Julie through a mutual friend, in a different city, at a wedding and little did I know we would end up living only a few miles from each other. Our first born boys have been playmates since they were 2! Not only did I immediately pick up on Julie’ s nuturing personality, but never have I met a more God-fearing family that serves our Lord whole heartedly and with complete humility.
I pray we can share this story and help bless our friends in their time of need. God is our Refuge and God is our Strength! May he carry the Nixon’s through this struggle with comfort and peace, to glorify His Name!
Follow their journey and specific prayer requests in this Facebook group: https://www.facebook.com/groups/181588749121966/
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