Donate to launch the 3q29 Foundation
Donation protected
Help Launch the 3q29 Micro Deletion Syndrome Research Foundation!
Hello Everyone,
My name is Amanda, and I am reaching out for help to launch a foundation dedicated to researching 3q29 Micro Deletion Syndrome.
This rare chromosomal disorder has impacted the lives of many individuals including my son Maxwell, yet it remains widely unknown and under-researched. By establishing this foundation, we aim to fill that knowledge gap, provide support to affected families, and pave the way for breakthrough treatments.
What is 3q29 Micro Deletion Syndrome?
3q29 Micro Deletion Syndrome is a genetic disorder caused by a small piece missing on the long arm of chromosome 3. Individuals with this syndrome can face a range of challenges, including intellectual disabilities, developmental delays, physical anomalies and feeding issues. As with many rare conditions, it often goes undiagnosed or misdiagnosed, leaving affected individuals and their families feeling isolated and without resources.
Why a Dedicated Research Foundation?
- Increase Awareness: A significant barrier to research and support is the lack of awareness. We aim to advocate for recognition on both a clinical and societal level.
- Provide Support: Our foundation will offer resources, guidance, and a supportive community for those affected.
- Drive Research: Through collaborations with medical professionals and geneticists, we plan to sponsor research projects, gather critical data, and aim for novel treatments.
How Can You Help?
Our goal is to raise £5,000.00 to get our foundation off the ground. Your generous contributions will help us:
- Create a comprehensive website and forum for affected families to connect and share.
- Host seminars and conferences to foster collaborations and share the latest research.
- Support research projects focused on understanding the syndrome better and finding potential treatments.
Every single donation, no matter how big or small, will make a difference.
If you can't contribute financially, sharing this campaign with your network or sharing your skills and expertise with our foundation can be invaluable.
In Conclusion:
The journey of understanding and supporting those with 3q29 Micro deletion Syndrome has just begun. With your help, we can create a foundation that not only sheds light on this rare condition but also offers hope, resources, and tangible solutions for those affected.
Thank you for your kindness, it means the world to my family that the ball to raise awareness has finally started to roll.
Organizer
amanda driscoll
Organizer
England