Sue Knittel’s FIGHT

Christopher Reeve said it right when he describes, “a hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles”.Let me introduce my hero: my mom, Sue Knittel. The woman who’s fight is only beginning and who’s story your about to read.Everyone has had accomplishments in their life, and behind those accomplishments is someone who has had an impact on their life. My mom is my greatest influence for several reasons. She supports me, and the decisions I make, showed me that success comes from hard work, she inspires me and taught me to always believe in myself. Whenever I am faced with a problem and have to make a decision, I know that she will be behind me one-hundred percent no matter what avenue I choose to travel down. It is a great feeling to know that someone is always going to support me in anything I choose to do. So here I am now, trying to turn the tables and provide her with as much love and support as humanly possible and return as much of the favor as I possibly can.Sue is one of those people you meet and instantly know they are genuine. She is the hardest working, determined, big hearted and talented women I know. There are so many people that depend on her and that she influences daily.She has two passions in life, the outdoors and her grandchildren. I have never seen such a loving relationship and trusting one as I have seen my mom and my children build. My goal: get mom strong enough to hug those girls tight again.How do you introduce someone who has had such a positive impact on so many things and people? I do not think you can, but if you were to meet her, you would understand why words just would not do her justice.The beginning: After months of blood tests and decreasing white blood cell numbers, the number fell to uncomfortable levels.A bone marrow biopsy was the next test to help determine whether cancer or another disease was affecting blood cells or marrow. Some changes to blood cells can be detected in marrow samples before they can be seen in blood samples.The purpose of the tests is to:• Confirm a blood cancer diagnosis or a bone marrow disorder• Detect abnormal chromosomes to determine your risk and to plan treatment• Evaluate your response to therapyThe doctor uses a hollow needle to remove a small amount of marrow cells (aspiration) and a small piece of bone filled with marrow (biopsy). The samples are then examined under a microscope to detect any chromosome changes (cytogenetic analysis) and other changes in the cells.We found ourselves waiting for 2 weeks while the marrow was processed and examined. Uncertainty is the most stressful feeling.The diagnosis:MDS: typically referred to as the bone marrow disorder. Each person's prognosis is unique, hence why a prognosis can often be difficult to make. In addition, the progression of the disease is unpredictable for many reasons. There are also different subtypes of MDS. The subtype that a person has will affect the doctor's prognosis and therefore the course of treatment. The only cure would be a bone marrow transplant.After meeting with another doctor and getting a 2nd and then 3rd opinion doctors needed more of a sample of the bone marrow biopsy. Not enough was taken at the first biopsy so another had to be performed. The biopsy revealed that the MDS had progressed and the levels of “blasts” went from a 4-6% to 28%. Anything above 20% is typically treated with chemotherapy. The journey:“One step at a time, one foot in front of another.I am going to get through this one way or another”October: MDS diagnosis.January: AML diagnosis.The MDS had progressed and was determined to be AML. The dreaded “C” word. Cancer. More specifically, Acute Myeloid Leukemia.What it is:• a cancer of the bone marrow and the blood• Progresses rapidly without treatment• Affects mostly cells that aren't fully developed- these cells can't carry out their normal functions• Can be a difficult disease to treat.Course of treatment:Step One: A mediport is inserted in chest during a short outpatient surgery. A port is a small disc made of plastic or metal about the size of a quarter that sits just under the skin. A soft thin tube called a catheter connects the port to a large vein. A mediport helps provide the chemo during therapy and transplant. DONE February 9th, 2018.Step Two: WAIT again for insurance to accept chemotherapy as treatment.Step Three: Chemo begins February 16, 2018. The chemo drug is outpatient every other day for 7 days than admitted to the hospital for 2-3 weeks for monitoring. After this, a two-week break is granted which will allow her to go home and rest. If she is in remission, (cancer is gone out of marrow) she will go right in for the transplant where she will receive induction chemotherapy and then receive the transplant. She will be in the hospital for another 3-4 week stay. This is where we are at now. We are starting this long process but we see the light. Ballpark figure of what this costs out of pocket $250,000. Every little bit helps, my hope is to take some of the burden from her and let her concentrate and put all efforts into getting better, to stay strong and to fight to come back to us.“You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, I lived through this horror. I can take the next thing that comes along. You must do the thing you think you cannot do.”– Eleanor RooseveltOn this night and every night- we FIGHT!

Donations

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  • Webster Beer Hall Fundraiser 
    • $3,455 (Offline)
    • 30 mos
  • Jacqueline Cahalan 
    • $50 
    • 35 mos
  • Douglas Kniffin 
    • $50 
    • 36 mos
  • MaryJo Toepfer 
    • $75 
    • 36 mos
  • Nate and Ashlee VanKouwenberg 
    • $45 
    • 36 mos
See all

Organizer

Bill Gleason 
Organizer
Fairport, NY
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