Rylee Kinnetts Final Journey

Today my beautiful daughter Rylee gained her wings. At only 15 years old she went through more than most do in their entire lifetime. She was born with an immune deficiency, but lived a normal life for the most part, then in 2014 at 12 years old she contracted West Nile Virus with encephalitis and spinal meningitis from a mosquito bite which left her in a wheelchair. She spent 10 months in the hospital, 6 months in the ICU, was in a coma, and a vegetative state. She fought so hard to get back to her old self, only to be diagnosed with end stage renal failure in August of 2017 due to an auto immune response "Goodpastures Syndrome", After 6 weeks in the hospital we came home only for her to be airlifted back to the hospital after having seizures, and was diagnosed with PRES syndrome, and CMV virus which caused encephalitis (for the second time), and spent another 3 weeks in the hospital, it set her so far back, she was so weak, but we started dialysis at home and were coping. In mid January she spiked a fever and was admitted to the hospital where she started having seizures again and they found a fungal infection in her bladder, that was treated inpatient for 2 weeks and we've been home for just over a week. Last night we went to a friend's to watch the Superbowl and she was happy and all smiles. I went to wake her up this morning for school and she had already passed. My heart is shattered, she was my only daughter, and now leaves her 3 brothers and I heartbroken and devastated. This was unexpected and I'm not sure how I'll pay for her services, I'm so far behind as it is from missing work due to all the recent hospitalizations. If you are able to help it would greatly help ease this burden, if you can't tgen please pray for our family, our lives are forever changed. She was so special, she fought so hard, and her little body just couldn't take anymore. Thank you ❤

Donations

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  • crystal bethea 
    • $90 
    • 38 mos
  • D B 
    • $25 
    • 38 mos
  • GARY Richard  
    • $500 
    • 38 mos
  • Emily Lesica 
    • $25 
    • 38 mos
  • Alaina Moynihan 
    • $20 
    • 38 mos
See all

Organizer

Shara Love 
Organizer
Edgewater, FL
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