Help Me return to Dr. Linskey for follow ups

Four years ago I was diagnosed with Trigeminal Neuralgia on the right side of my face. This disease affects the 5th cranial nerve which sends pain signals to the brain. It divides into 3 branches of the face. I have it in all 3 branches. This disease is documented as the worst pain known to mankind. I went through 3 brain surgeries with Neurosurgeons in Louisville and all 3 did not have good outcomes. My last surgery ended in the most dreaded outcome, anesthesia dolorosa. An outcome that make my life a day by day or minute to minute life. I live in horrific chronic pain on a daily basis with the right side of my face. The right side of my face, mouth and part of my head are numb AND it feels like it’s all burning 24/7. All of my teeth feel as though they are being pulled out over and over. I still get the shocks of TN in my temple and ear and tongue and eye. It never stops. Moving my face is painful. I had to get a permanent feeding tube because chewing and swallowing is so painful. I had to completely stop working. I have no comfort zones because of my face. It changed my life forever and my family’s life. And now, last October, the symptoms of trigeminal neuralgia began on the left side of my face. This is called bilateral TN. With the right side of my face, there is no end to my suffering. There are no more surgical options and I am maxed out on medications that do very little. And for my left side, there is HOPE. His name is Dr. Linskey. He is THE neurosurgeon to go to for TN. He is also in Orange, CA. I am in Louisville, KY. I do know that he is in network with my insurance company which is an enormous Godwink. However, there are travel expenses to get there and back for the consultation and accommodations. And then if he agrees that he will take me on to do the MVD (craniotomy to place padding in between the nerve and whatever is compressing it), I will have to return again for surgery and a longer period of time. My mother-in-law will be my support companion. I feel like I’ve been given so many Godwinks to put me on this path to Dr. Linskey. And I know in my heart that amidst the anxiety, physical and emotional and mental fears and hurts, and financial strains- there is hope. There is faith beyond how things ended with the right side of my face. There is faith in this man who has dedicated so much of himself and his talent to people who suffer so greatly with TN to offer them relief and hope. I just need help making it all happen. It is so very hard to ask for help AND YET, here I am doing so. It is with the support and encouragement of a beautiful tribe I have that I ask for help to get me to Dr. Linskey. A man who has the gift of healing hands. Thank you in advance. I love you. I love me. I love us. #Joywarrior
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Ro Cary
Louisville, KY

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