Us, not being one's to ask for help, and the suggestion from a close friend, to ask ourselves "When is it too late to seek assistance?" prompted this plea for help!
Rose, a former Nurse, was so used to taking care of everyone else, then she has gradually, over the past 6+ years, has become totally dependant of everyone else. She has lost all of her mobility, and every aspect of life, and is in a position for complete care at the hands of others. She has gradually lost many irreplaceable aspects of Family Life and Normal Life, due to this horrendous, incurable disease. She can no longer walk, or stand; She can no longer use her arms, and only has about 3-5% use of her hands; She cannot feed herself, or get a drink on her own; Aside from talking (which is limited) and breathing (which is dimishing), every aspect of life is provided by her 3 family care givers!
The Medical expenses for Rose's care are continually mounting, and continue to escalate, as she struggles to fight this disease. The ongoing costs, associated with this dreaded disease, have exhausted our means, and are a constant struggle, making it very difficult, month after month.
Note: The average cost of caring for an A.L.S. patient is between $75,000-$150,000 per year.
Rose must frequently be transported to various Doctors and Medical Facilities, for continued care. She has been hospitalized, in and out of our area, many, many times, over the past 5 years, due to complications related to A.L.S. Rose's need for Medical Equipment and Supplies continues to grow, and will continue to do so. We are continually trying to adapt our home to accomodate her needs, on very limited resources.
Rose can no longer help to care for, and help raise, our 14 year old daughter, Cassie, and she feels as if she has robbed of her of the past few years of her childhood, due to the complications of this disease. Cassie is constantly helping to care for her Mom, when she is not in school.
She also has a "Bucket List" of things she would like to be able to do, with/for Cassie, before the disease progresses further, and/or her time runs out! Things like taking Cassie to the Beach one time, going to the Zoo with Cassie one last time, taking Cassie to an Amusement Park one last time, taking Cassie to the Aquarium one last time, etc. These are all things that Rose has not been able to do, or share with Cassie, over the past 4-5 years, due to the demands of this horrific disease.
Rose has been adament about remaining at home, as she fights this disease. She does not wish to go into a facility, whereas she would not receive the amount of care, as she receives at home. Rose spends mostly all of her time, in her bed, occasionally being able to get into her power chair/wheel chair. She is completely confined to one room of our home. She rarely gets to go outside, with help of family, but she cannot stay outside very long.
Any amount of donation is greatly appreciated.
God Bless you and your family,
Rose Christopher and Family
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