Donation protected
In November 2020 shortly before his 16th birthday, Kasper was diagnosed with a rare and aggressive childhood cancer - embryonal Rhabdomyosarcoma (eRMS). It was to be the first of many shocks on the cancer rollercoaster. He underwent surgery five times before being able to start intensive chemotherapy in January 2021 and has 6 weeks of daily radiotherapy still to come on top of the chemo. The 5 year survival rate for Rhabdomyosarcoma can be as low as 20%. The overall survival rate after one relapse is 10%. Kasper is going down a road that will split into two paths. Life and death.
Kasper is grateful for all funds received which will pay for:
· current and post-chemo molecular analysis of mutating tumour cells, and
· genetic and immunology profiling of the environment (ie Kasper’s body) with
· para-oncologists and scientists to review, analyse and interpret the data and identify targeted therapies
· Kasper's ongoing data coupled with blood biopsy tracking of his progress and outcome monitoring will be used to model a new paradigm for the threatment of Rhabdomyosarcoma
As Kasper says, this is the difference between bombing the building in the hope of obliterating the intruder or sending in a trained marksman. This new paradigm medicine is only just emerging into mainstream practices.
Kasper is asking for your help to do comprehensive molecular testing and analysis to give him a fighting chance. He will then open source his data so that it can be used to advance understanding of rare cancers and help children like him around the world.
Kasper’s Hope
· Kasper’s hope is that he will be able to attend 6th form.
· Kasper’s hope is that children in the future will have a real chance of better outcomes through targeted medicine.
Follow Kasper's story on Instagram
The Childhood Cancer Research Trust
By donating to Kasper’s treatment, your contribution will be automatically matched by a sponsor who will donate the same amount to Kasper’s charity The Childhood Cancer Research Trust (currently undergoing registration with the charities commission).
The Childhood Cancer Research Trust will focus on developing molecular analysis and treatment strategies for childhood cancers and work in consultation with Sarcoma UK .
LOVE IS. Album
400 years of music, 70 minutes, 5 languages, 2 boys, 1 purpose: to raise money for Childhood Cancer Research
Myron and his friend Archie were halfway through recording a cancer charity album when Myron's brother was diagnosed with an aggressive childhood cancer. Witnessing first hand the gruelling treatment protocols, Myron and Archie redoubled their efforts and this musical collaboration has become an impassioned bid to raise desperately needed funds for Childhood Cancer Research to find better treatments for the millions of children who must face this traumatic journey. LOVE IS. will be released in late June 2021 when it will be available on the usual platforms such as iTunes and Amazon as well as streaming on Spotify.
Donations of £25 will receive a free signed CD.
In addition the Presentation Digipak CD can be purchased from the Ordiary Child e-shop. Click here to pre-order LOVE IS.
LOVE IS. Album Website
Kasper is grateful for all funds received which will pay for:
· current and post-chemo molecular analysis of mutating tumour cells, and
· genetic and immunology profiling of the environment (ie Kasper’s body) with
· para-oncologists and scientists to review, analyse and interpret the data and identify targeted therapies
· Kasper's ongoing data coupled with blood biopsy tracking of his progress and outcome monitoring will be used to model a new paradigm for the threatment of Rhabdomyosarcoma
As Kasper says, this is the difference between bombing the building in the hope of obliterating the intruder or sending in a trained marksman. This new paradigm medicine is only just emerging into mainstream practices.
Kasper is asking for your help to do comprehensive molecular testing and analysis to give him a fighting chance. He will then open source his data so that it can be used to advance understanding of rare cancers and help children like him around the world.
Kasper’s Hope
· Kasper’s hope is that he will be able to attend 6th form.
· Kasper’s hope is that children in the future will have a real chance of better outcomes through targeted medicine.
Follow Kasper's story on Instagram
The Childhood Cancer Research Trust
By donating to Kasper’s treatment, your contribution will be automatically matched by a sponsor who will donate the same amount to Kasper’s charity The Childhood Cancer Research Trust (currently undergoing registration with the charities commission).
The Childhood Cancer Research Trust will focus on developing molecular analysis and treatment strategies for childhood cancers and work in consultation with Sarcoma UK .
LOVE IS. Album
400 years of music, 70 minutes, 5 languages, 2 boys, 1 purpose: to raise money for Childhood Cancer Research
Myron and his friend Archie were halfway through recording a cancer charity album when Myron's brother was diagnosed with an aggressive childhood cancer. Witnessing first hand the gruelling treatment protocols, Myron and Archie redoubled their efforts and this musical collaboration has become an impassioned bid to raise desperately needed funds for Childhood Cancer Research to find better treatments for the millions of children who must face this traumatic journey. LOVE IS. will be released in late June 2021 when it will be available on the usual platforms such as iTunes and Amazon as well as streaming on Spotify.
Donations of £25 will receive a free signed CD.
In addition the Presentation Digipak CD can be purchased from the Ordiary Child e-shop. Click here to pre-order LOVE IS.
LOVE IS. Album Website
Organizer
Ordinary Child
Organizer
England