I am setting up this fundraiser on behalf of Mia and her family to help them with all that costs they continue to build up over the course of Mia's medical journey while still having another child at home and trying to maintain a normal lifestyle around everything going on and paying all bills necessary.

Mia is a funny, outgoing & energetic 5 year old girl! She has the biggest smile that lights up any room she enters. Mia is very well known for her resilience and the joy she spreads. Mia is a warrior who does not shy away from difficult things- she shows this daily as she works through her many services and rolls with the rollercoaster that Autism Sprectum disorder is. From a young age Mia has struggled with gastrointestinal issues, always leaving doctors wondering. Over this past year, she has endured surgeries, testing, exams and a lot of travel. She's been to Vermont, Saratoga, Boston and most recently NYC. In NYC the family had the pleasure of meeting with one of the world's best doctors, Dr. Cieciegrea. Looking through biopsies, images, surgical results he believes Mia may have a very rare gi motility disorder called Chronic intestinal pseudo-obstruction. While this is already a very difficult condition to treat, more challenges present themself with Mia's comprehension and body awareness factors in play. Sometimes an electronic simulator can be placed, paired with therapies, but it would require the ability to understand and react to body signs and understand the therapies. Due to this, Mia's already known barriers she works hard to break down daily, he thinks a colostomy bag and potential g-tube may be the best course of treatment. The family will return next month again to NYC for a surgical test to confirm this doctors thoughts so they can continue on their road of planning treatment. The doctor fears that waiting will open the door to new challenges, as this condition often worsens with age and lack of treatment: colon infections, pernament muscle damage, malnutrition. Mia struggles daily with this: urinary incontinence that leaves her very frustrated, food aversion and fear of eating, intense bowel obstructions with an intense amount of needed clean outs monthly, as well as the general pain and discomfort from all of this.

Her parents are very nervous, but very upbeat individuals who will make the best out of every situation. Mia is great, but its her parents lead that makes her even better of a person. Some small examples: this family is well known for Christmas drives for families in need, Easter basket drives hopeful that a child doesn't go without an Easter basket, small every day tasks like grocery shopping for families currently effected by COVID19, fundraising yearly for the Autism Alliance of NENY. They put their heart and soul into everything they do, just as they will this hurtle. This family works full time jobs, and missed time will happen given the circumstances presented. This gofundme round two, will be to help with travel costs, missed time at work, support and care for their youngest child while traveling, etc. This family gives and loves everyone around this with no expectation of receiving anything in return, now is their time to get the community love and support they deserve. No amount is too small, and everything is beyond appreciated.