Support for the Phillips family
Donation protected
Allen, Julie and their family have been facing a lot of hardship since last summer. Allen suddenly lost function of his right arm on July 26th 2019, a few days later losing function of his right leg. Since then, it’s been a rollercoaster of ups and downs including multiple hospital stays, a month in a rehab facility, a brain surgery and countless other doctors appointments and therapies. In October 2019, Allen was diagnosed with what they believed was a form of Multiple Sclerosis called Tumefactive MS, a rare and aggressive form, but there were treatment options.
They are both unable to work as Julie is Allen’s full time caregiver and Allen is on medical leave. They have two small toddlers at home. And Allen has 2 older children that this is effecting as well. They’ve applied for every type of disability and leave coverage available but the process is a very long one and they’ve been waiting for an answer since August 2019. Allen has been getting treatment for MS since the end of 2019 and his doctors were all optimistic that the worst of the medical problems were behind them and this new treatment was the best there was for his form of MS.
However, over the last weekend Allen began to lose his vision and became extremely confused. By Monday, Allen’s doctor directed them to go to the ER at Hartford hospital and since then it’s been another whirlwind of tests and pokes and prods. The newest development is that Allen’s MRI shows a new growth on the back side of his brain, in the area that affects how the brain processes images and focuses the eyes. The doctors are stumped, this new development isn’t following any of the normal patterns of MS and they aren’t sure what they’re really dealing with, they’re beginning to question his initial diagnosis and are considering other options aside from MS now. The neurologists at the hospital have done a new spinal tap and are consulting with neurosurgery to see if this new growth is able to be biopsied, but they’re concerned because where his first brain lesion was at the surface, this new growth appears to be deep in his brain and they’re wary of trying to biopsy it because of the delicate tissue they’d have to go through to access the growth. All of these new developments have come as a shock to everyone and Allen and Julie are trying to scramble to stretch their resources to accommodate another hospital stay, gas, parking, food and all of the other expenses that come with being in the hospital long term on top of their everyday bills and the never ending medical bills. That’s where we come in, this fundraiser would help Allen and Julie to put their minds at ease that they don’t need to worry about the additional expenses for traveling and staying in the hospital as well as give them a helping hand with their everyday expenses until they are approved for disability. They’re good, genuine people and loving parents and they don’t deserve what life has thrown at them. They are so appreciative of all of the love, support and prayers that they have received and the rest of the family is too. The support is what is carrying them through all of this darkness.
They are both unable to work as Julie is Allen’s full time caregiver and Allen is on medical leave. They have two small toddlers at home. And Allen has 2 older children that this is effecting as well. They’ve applied for every type of disability and leave coverage available but the process is a very long one and they’ve been waiting for an answer since August 2019. Allen has been getting treatment for MS since the end of 2019 and his doctors were all optimistic that the worst of the medical problems were behind them and this new treatment was the best there was for his form of MS.
However, over the last weekend Allen began to lose his vision and became extremely confused. By Monday, Allen’s doctor directed them to go to the ER at Hartford hospital and since then it’s been another whirlwind of tests and pokes and prods. The newest development is that Allen’s MRI shows a new growth on the back side of his brain, in the area that affects how the brain processes images and focuses the eyes. The doctors are stumped, this new development isn’t following any of the normal patterns of MS and they aren’t sure what they’re really dealing with, they’re beginning to question his initial diagnosis and are considering other options aside from MS now. The neurologists at the hospital have done a new spinal tap and are consulting with neurosurgery to see if this new growth is able to be biopsied, but they’re concerned because where his first brain lesion was at the surface, this new growth appears to be deep in his brain and they’re wary of trying to biopsy it because of the delicate tissue they’d have to go through to access the growth. All of these new developments have come as a shock to everyone and Allen and Julie are trying to scramble to stretch their resources to accommodate another hospital stay, gas, parking, food and all of the other expenses that come with being in the hospital long term on top of their everyday bills and the never ending medical bills. That’s where we come in, this fundraiser would help Allen and Julie to put their minds at ease that they don’t need to worry about the additional expenses for traveling and staying in the hospital as well as give them a helping hand with their everyday expenses until they are approved for disability. They’re good, genuine people and loving parents and they don’t deserve what life has thrown at them. They are so appreciative of all of the love, support and prayers that they have received and the rest of the family is too. The support is what is carrying them through all of this darkness.
Organiser and beneficiary
Molly Tottingham
Organiser
Berlin, CT
Julie Phillips
Beneficiary