funeral fund

Update 12-9-2017
I completed and received results of an X-ray due to additional pain in my back and I keep losing my grip in the hand, X-rays indicates a broken rib.

Brittle Bone Disease Update: Is as follows. 2 fractures in the spine that didn’t heal correctly and 3 lower fractures ribs, that didn’t heal correctly. I currently have an upper rib fracture, in the healing process and surely wouldn’t expect that to heal correctly. Doesn’t take much pressure to break a bone anywhere in the body.

Esophagus “D” update is about the same, other than a medication change, however the adverse reaction I had, ended up me to loose weight and down to 130 pounds and they put me back on my original medication. I get sick a lot of times due to Acid Reflux and don’t eat all the time or little meals all day long.

Cardiac Heart Failure is the same, nothing more can be done and take the medication to help me make through another day. Heart Doctor stated, I am living a slow death and does not allow any medical procedures, unless I really need it, but the risk factor of surviving is very low.

End Stage COPD update, I am on oxygen 24 hours a day and I am on 8 liters and difficult to breath doing the simplest things in life. When I get out to a Doctors Appointment, I have to take external bottles of oxygen. I use a CPAP Unit, a Air Concentrate Unit and a Nebulizer Unit. The Pulmonary Doctor wants me to change over to a Bi-PAP Unit. There is no cure for the COPD.

Medication and Insurance I take over 30 medications every day. A lot of my medication are Tier 4 classification.New Insurance Policy will come effective in January and the deductible starts over and I had to get a special policy due to amount of medications I take and costs of medications. My Insurance Policy just doesn’t cover some of my medication, so I directly have to pay the deductible/co-payment, out of pocket. I have Medicare coverage cost and purchased Part D coverage costs, however now I am not eligible for prescription discount cards. Most of my medications are Tier 3, 4 or 5, which the
co-pay for these meds are still expensive. I paid $500.00 on 3 meds this week, so what do you choose to pay?

Electric bill, I received a shut off notice, so had to pay that to keep my life sustaining equipment running, so many choices to what not to pay. If you can donate, it would be appreciated, considerate it as an investment in keeping someone to extend their life for as long as they can. My current insurance doesn't cover any medical supplies, i.e. Oxygen, oxygen concentration unit, cpap unit and doesn't cover a lot of the heart medicine, the other co-pays are extremely high. With less money coming in, I am falling behind on my utility bills and we have cut down on food, generally a light meal for lunch and we eat a cheap dinner, soup & sandwich or just chicken wings/legs, pot pies, eggs & toast or pierogies.

Help & Assistance; I was turned down for Medicaid, LIHEAP or any other local, state or federal assistance programs, we tried every avenue. We are over the income guidelines, they go by gross income and do not factor taxes or expenditure.

If you can donate it would be greatly appreciated and please share this with your friends/family.

Thank you in advance!
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David Lilley 
Rochester, PA
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