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Get Jack Jumping

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Help us get Jack jumping.  Jack really is an amazing young man who has again been diagnosed with a rare brain tumour.  He’s the son of our beloved friend and work colleague Jan. 
 

At the age of 15 years old Jack was diagnosed with a medulloblastoma brain tumour. There was found to be another little one which they think had seeded from the first main one. 


He underwent brain surgery, 30 sessions of radiation and 7 months of gruesome chemotherapy.  It took its toll on Jack, getting ataxia from the surgery, foot drop from the chemo and of course the hair loss which has never really grown back properly. 
 

We thought all was well as Jack has 3 monthly MRI scans to check on him. About 12 months after treatment was completed, the second little tumour reared its ugly ahead again. Jack received another 18 doses of radiation on the tumour. We thought that had done the trick. In January this year it came back again! It is in a position where no more radiation is possible as it would send Jack blind.


The oncologists have said this second one is a very rare variation of the tumour and are trying to find drugs that could eradicate it. Not an easy feat apparently. They are in touch with the USA. Jack is undergoing chemo at the moment to try and reduce the tumour. In a few weeks he will have another MRI to check what’s happening. This is where the issue really lies. Is there a drug that can kill this horrible thing? The oncologists are actively trying to find any trials or drugs that may help Jack. Not easy. We would really like to be in a position to help Jan whether it be to help pay the bills, take time off or to be ready to travel with Jack to the USA for treatment so her boy gets better!! 


When Jack was first diagnosed we ran a fundraiser called “Get Jack Jumping” to help with his initial treatment.  Please help us get Jack jumping again.
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    Organizer and beneficiary

    Kylie Giddins
    Organizer
    Austinville, QLD
    Jan Coles
    Beneficiary

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