Help My Son Walk

My son has always been ahead of his time, but unfortunately, he's running out of time. Jayden was born premature at 28-weeks-old, his lungs under-developed and lacking oxygen, and a diagnosis of Cerebral Palsy Spastic Diplegia when he turned 5-weeks-old. By the time he was two, he underwent hip surgery to help a dislocation because of his lack of muscle tone and was immobilized with a cast covering his lower torso.Despite his grim beginings, my son Jayden has taught me what it means to be a Super Hero. Super Man, Spider Man, and Captain America have ironically become his idols, symbols of what every little boy dreams of becoming.He's now nine-years-old, and although he is just as capable as his heroes emotionally and mentally, he has been confined to a walker to help him walk since he was a toddler. As things stand, he will never play unmodified sports, never know what it's like to ride a bike, or run wildly as the waves crash on a beach. But he has the heart of a Super Hero. He has endured years of physical therapy three times a week, occupational therapy, aquatic therapy, and even feeding therapy. Some days, he does them for hours back-to-back. All in an effort to just be a normal boy. He doesn't complain, but unfortunately all the greuling effort on his behalf is not working. We've exhausted every opportunity as every parent would and his muscles are working against him, getting tighter and now even hindering his ability to use a walker. We have tried it all, but unfortunately, Cerebral Palsy has been a villan getting the best of my Super Hero. We have met with several different experts in the field, each offering their idea of what could be a solution to his life-long battle. After weeks of research on each one, we finally found a doctor in New Jersey whose patients have heralded his success and gives us hope. While it might require my son to learn how to walk all over again, the surgeon has a superb track record of positive growth, the best in the nation. At minimum, my Super Hero will be able to walk longer distances in his walker with less pain. But it could also free him of the cold metal that surrounds him and allow him to use ankle braces with a cane. That small freedom from all he's known could be the difference between a life confined to permanent assistance and one where he can be almost as free as "normal" children his age. If all goes well, he could possibly walk unassisted during adolescence. The reason we are asking for help, is because at-worst, we know there will be improvement given this last and final resort. But it is unfortunately beyond our means. It's humbling to ask the help of strangers. But a procedure which costs over $17,000 is no small burden. My family is not asking for help in terms of travel, hotel, food, or any other expenses that will build up on our journey. We want every penny to go to our son and so he knows the humanity that made his dream possible comes from friends, family, and the beautiful people he might never get to meet in person. Like every parent, we just want to give our son the best chance at life. But we cannot do it alone. We are humbly asking for your help. We have no doubt our little Super Hero will one day pay it forward. He's always been ahead of his time, but his ability to help others is limited without your help. We are beyond thankful for any donation and are humbled by your giving. Procedure specifics: http://pediatric-orthopedics.com/Treatments/Muscle_Surgery/Perc_Lengthening/perc_lengthening.htmlDoctor: http://pediatric-orthopedics.com/

Donations

  • Mary Ann Levine 
    • $55 
    • 28 mos
  • L.D. Mendez 
    • $50 
    • 28 mos
  • Jeff Johnson 
    • $600 
    • 29 mos
  • Titi Carmen Guzman 
    • $50 
    • 29 mos
  • Albert & Ivonne Caro 
    • $50 
    • 29 mos
See all

Organizer

Joseph Mojica 
Organizer
Riverview, FL
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